Questions to Ask Your Doctor About Systemic Mastocytosis (SM)
Systemic mastocytosis (SM) can be a mysterious disease. Since doctors don’t see the disease very often, it can take 2 to 10 years to receive a proper diagnosis after onset of symptoms1. Pursuing a diagnosis, or understanding what it means and how SM can impact your life, can be confusing and stressful. It is important to have an informed conversation with your doctor so you can better understand what your diagnosis means, what you can expect, and the best choices for you in managing your treatment.
These conversations are easier to have when you are prepared. Here are some questions that can help start a conversation with your doctor about SM diagnosis, treatment, and ongoing support. Not all of these questions will apply to you, and you might have others you can write in using the additional space at the bottom of the document.
Print this sheet out, and bring it with you to your appointment. Also, consider bringing a notebook or a voice recorder so you can easily review the answers your doctor provided once you are home. As it can sometimes be overwhelming to have these discussions with your doctor, it might help to ask a caregiver or loved one to accompany you to assist in capturing the information.
*The Mastocytosis Society is a not-for-profit group, independent from Novartis. Novartis has no financial interest in this organization, but may provide occasional funding support. Novartis is not responsible for the organization’s information content or actions.
1. Sev’er A, et al. Women’s Health & Urban Life. 2009; 8(2):84-112.