The cause of a rare, inherited, often fatal kidney disease in many patients remained elusive for years, despite multiple attempts to solve the mystery. Then in 2012, a team of researchers cracked some of the unsolved cases in just six weeks.

To understand the impact of psoriasis on those who live with it, we helped organize a global survey of more than 8,000 people who have this skin condition. Then we commissioned a body painter to bring the results to life, using skin as her canvas.

Melanoma survivor T.J. Sharpe shares why patients should know their treatment options.

Ron Hollander, president of the International Neuroendocrine Cancer Alliance, talks to us about patient advocacy.

Groups of people doing communal exercises are an everyday sight in Japan, but for one woman they are a very public way to show she is fighting back.

Parents and doctors can help children understand rare diseases like TSC and SJIA with the help of cartoon dogs and comic book superheroes.

We surveyed 7,000 people in seven countries to find out what they know about multiple sclerosis (MS). Our survey identified several surprising misconceptions.

Learn about how digital is changing the face of patient advocacy.