Conversations with Patient Advocates: Ron Hollander, president of INCA
Ron Hollander, president of the International Neuroendocrine Cancer Alliance, talks to us about patient advocacy.
Nov 10, 2017
We believe we can make a greater difference through collaboration. That is why we are excited to introduce a new series – called “Novartis Connects: Conversations with Patient Advocates” – that will showcase stories from many of the patient advocacy groups working with Novartis. These organizations are helping us connect with the cancer community on a more personal level so we can better understand and meet patients’ needs.
November 10 is World NET Cancer Day, dedicated to raising awareness of neuroendocrine tumor (NET) cancers. We recently spoke with Ron Hollander, president of the International Neuroendocrine Cancer Alliance (INCA) and executive director of the Neuroendocrine Tumor (NET) Research Foundation, who told us about his work and what sparked his passion for patient advocacy. He is stepping down as executive director of the NET Research Foundation this month after having served six successful years in this role.
We envision a world where all neuroendocrine cancer patients have access to a timely diagnosis, the best care, and ultimately a cure, no matter where in the world they live.
Ron Hollander, president of INCA
What gives you hope?
Hollander: The NET cancer community is a very special community. These types of cancers aren’t well known or understood, but when patients meet each other, they make a real connection. They share information and want to help each other. There’s also a strong sense of camaraderie among NET specialists from different institutions and localities. Working with this passionate community gives me a lot of hope and is very inspiring.
Novartis provides funding to INCA and the Neuroendocrine Tumor Research Foundation. Hollander was not compensated for sharing his story, and all opinions are his own.
Ron Hollander, president of the International Neuroendocrine Cancer Alliance, shares his patient advocacy story. #NETCancer
Looking for more information about INCA?
INCA is a US-based nonprofit organization that provides patient education, support and information on neuroendocrine cancers. Its members span 17 countries and four continents.