Bold Advocates for Blood Cancers and Blood Disorders
Blood diseases place a huge burden on individual patients, their families and on wider society. Yet advances in hematology treatment give so much cause for hope. It’s our responsibility to turn that hope into reality. Hear from five bold advocates who inspire us.
Sep 01, 2020
September is Blood Cancer Awareness Month. Get to know the stories of people living with, or advocating for those impacted by blood cancers and blood disorders. People who, in their own bold way, challenge the status quo – for themselves and those around them.
Support among patients brings out hope for the future in Myelodysplastic Syndrome (MDS)
What I would say to other MDS patients is there is hope. There are resources and support groups, and we will try to answer any questions you have and we’ll work together to get through it.
Understanding CAR-T cell therapy in advanced B-cell blood cancers
I had a tenacity to pursue, research and study. I pressed my doctor to give me some other choice. He told me about CAR-T cell therapy. I spent my waking hours researching, reading every article and learning all there was to be learned.
The untold stories of sickle cell disease
For the teenagers living with sickle cell and the young people, don’t let sickle cell hold you back from your dreams or aspirations because you can achieve anything you want to achieve, as corny as it sounds. Just don’t give up. You can do it.
Speaking up when Chronic Myeloid Leukemia (CML) stops being the “good cancer”
I challenged my doctor, often asking questions, ‘What’s next? What can you do for me?’ Just to see what else is out there – always hoping there's something more coming up.
Helping Myeloproliferative Neoplasms (MPN) patients help themselves
I like to use the acronym HIKE with MPN patients. I want to provide hope, inspiration, knowledge and education to patients to help them HIKE through their journey.