World Sickle Cell Day 2019

For over 40 years Novartis has been committed to understanding sickle cell disease and working towards treatment.
Jun 19, 2019

Uncovering Sickle Cell Disease

Through research and the creation of resources, we will not stop our efforts to support this community of patients, providers and caregivers alike. We are honored these patients around the world have shared their stories and are helping us show what living with this disease truly looks like. They are not alone. We are a large community and support system and together we can do more.

Every day, people endure the painful and life-threatening symptoms of sickle cell disease in the shadows because of fear, stigma, and isolation. Now, a new picture is emerging.

Together with Dr. Alex Kumar, a global health physician and photographer, Novartis is sharing images and stories from around the globe that are intended to inspire the sickle cell community and raise awareness of the disease to help change how the world sees it.

A very enlightening series from Dr. Alex Kumar and @Novartis on the untold sickle cell stories of patients around the world to mark #worldsicklecellday. https://t.co/I79IfDVcxN

Vas Narasimhan (@VasNarasimhan) June 19, 2019

Sickle cell disease is a hereditary and life-threatening condition that causes ongoing vascular damage and repeated injury to the blood vessels and organs. This lifelong illness often takes an extreme emotional, physical, and financial toll on patients and their families.

More needs to be done to help raise awareness of sickle cell disease, and that is why Novartis is working together with patient support groups around the world to help bring sickle cell disease out of the shadows. Learn more at UntoldSickleCellStories.com.


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