Patient group support
Novartis interacts with many patient groups. These groups play a crucial role by informing and supporting patients, as well as safeguarding the rights of patients and caregivers. Further, patient groups provide pharmaceutical companies with important advice from their own perspective. Interacting with patient organizations enables Novartis to learn about unmet patient needs, and this information can guide us in the development of new medicines. In all our interactions with patient groups, we are committed to working ethically and transparently while respecting their integrity. With regards to the disclosure of patient group support, Novartis is fully compliant with all legal and statutory requirements as a minimum standard in a given country.
We commit to disclose the names of patient groups that have received funding or non-monetary support from Novartis as well as the purpose of this support in the US and for international groups. This list is updated annually. As member of the European Federation of Pharmaceutical Industries and Associations (EFPIA), Novartis is complying with the amended (June 2011) Code of Practice on Relationships between the Pharmaceutical Industry and Patient Organizations and is thus disclosing the monetary value of its support to European patient organizations in EFPIA-member countries during the year 2012. Novartis fully recognizes that it has many common interests with patient organizations which represent and/or support the needs of patients and/or caregivers. Novartis endorses the EFPIA Code ensuring that its relationships with patient organizations take place in an ethical and transparent manner.
| Patient Group Name and purpose of support | Division |
|---|---|
| Alamo Breast Cancer Foundation Patient / public education and awareness on disease |
Pharma |
| Allergy & Asthma Network Mothers of Asthmatics General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Alzheimer's Association General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Alzheimer's Disease and Related Disorders Association Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Alzheimer's Foundation of America Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| American Academy Of Neurology Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| American Cancer Society General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| American Cancer Society General support of activities incl. fund raising, advocacy, membership, etc. |
NIBR |
| American Cancer Society Cancer Action Network General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| American Cancer Society Eastern Division General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| American Cancer Society New England Division General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| American Diabetes Association General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| American Diabetes Association General support of activities incl. fund raising, advocacy, membership, etc. |
Sandoz |
| American Diabetes Association General support of activities incl. fund raising, advocacy, membership, etc. |
NIBR |
| American Heart Association Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| American Heart Association General support of activities incl. fund raising, advocacy, membership, etc. |
Sandoz |
| American Lung Association Patient / public education and awareness on disease |
Pharma |
| American Lung Association of the Midland States Patient / public education and awareness on disease |
Pharma |
| Angiogenesis Foundation Patient / public education and awareness on disease |
Pharma |
| Arc Of Essex County General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Arthritis Foundation Research grants incl. clinical trials, registries, health outcome research |
Pharma |
| Arthritis Foundation Northeast Region General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Asthma And Allergy Foundation Of America Patient / public education and awareness on disease |
Pharma |
| Basal Cell Carcinoma Nevus Syndrome Life Support Network Patient / public education and awareness on disease |
Pharma |
| Boomer Esiason Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Boston Health Care for the Homeless Program General support of activities incl. fund raising, advocacy, membership, etc. |
NIBR |
| Breast Cancer Research Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Breastcancer.org Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Bright Pink Nfp General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Cabell-Wayne Association of the Blind, Inc. General support of activities incl. fund raising, advocacy, membership, etc. |
Alcon |
| California Transplant Donor Network General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Can Do Multiple Sclerosis General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Cancer Care Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Cancer Patients Alliance for Clinical Trials Patient / public education and awareness on disease |
Pharma |
| Cancer Support Community Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Carcinoid Cancer Awareness Network Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Carcinoid Cancer Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Caring for Carcinoid Foundation Services provided by a third party to support attendance to an advisory board. Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Cerebral Palsy Of North Jersey Patient / public education and awareness on disease |
Pharma |
| Children and Adults with Attention Deficit/Hyperactivity Disorder - CHADD General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Childrens Brain Tumor Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Children's Organ Transplant Association General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Chronic Obstructive Pulmonary Disease Foundation Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Cooleys Anemia Foundation Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Cosmetic Executive Women Foundation Patient / public education and awareness on disease |
Pharma |
| Creative Center at University Settlement General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Creative Heartwork General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Crohn's and Colitis Foundation of America General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Cushings Support And Research Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Cystic Fibrosis Foundation Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Every Child by Two Patient / public education and awareness on disease |
V&D |
| Facing Our Risk of Cancer Empowered Patient / public education and awareness on disease |
Pharma |
| Families Fighting Flu Patient / public education and awareness on disease |
V&D |
| Family Community Services of Somerset County General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Foundation Fighting Blindness-USA General support of activities incl. fund raising, advocacy, membership, etc. |
Alcon |
| Foundation For Womens Cancer Patient / public education and awareness on disease |
Pharma |
| Friends of Cancer Research Research grants incl. clinical trials, registries, health outcome research |
Pharma |
| Georgians For A Healthy Future, Inc. Patient / public education and awareness on disease |
Pharma |
| GIST Cancer Research Fund General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Group B Step Association USA Consultancy, speaker services |
V&D |
| Group B Strep International Patient / public education and awareness on disease |
V&D |
| Heartland Border Walk Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Huntingtons Disease Society Of America General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Illinois Maternal and Child Health Coalition Patient / public education and awareness on disease |
V&D |
| Immunization Action Coalition Patient / public education and awareness on disease |
V&D |
| Jimmy Fund General support of activities incl. fund raising, advocacy, membership, etc. |
NIBR |
| Kaleidoscope of Hope Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Latino Alzheimer's and Memory Disorders Alliance Patient / public education and awareness on disease |
Pharma |
| Leukemia Research Foundation Patient / public education and awareness on disease |
Pharma |
| Living Beyond Breast Cancer Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Louisville Comprehensive Care Multiple Sclerosis Center General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Lung Cancer Alliance Patient / public education and awareness on disease |
Pharma |
| Lustgarten Foundation Gallos Girls General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Lymphoma Research Foundation Patient / public education and awareness on disease |
Pharma |
| March of Dimes General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Massachusetts Prostate Cancer Coalition Patient / public education and awareness on disease |
Pharma |
| McCourt Foundation Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Melanoma Research Foundation Patient / public education and awareness on disease |
Pharma |
| Men Against Breast Cancer General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Meningitis Angels Consultancy, speaker services |
V&D |
| Mental Health America Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Mental Health America Of Middle Tennessee General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Mental Health Association In New Jersey General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Metastatic Breast Cancer Network Patient / public education and awareness on disease |
Pharma |
| Metavivor Research And Support General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Midwest Heart Foundation Research grants incl. clinical trials, registries, health outcome research |
Pharma |
| MS Cure Fund General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| MSWorld Patient / public education and awareness on disease |
Pharma |
| Multiple Myeloma Research Foundation Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Multiple Sclerosis Association of America Patient / public education and awareness on disease |
Pharma |
| Multiple Sclerosis Center Georgia General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Multiple Sclerosis Center Of Atlanta General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Multiple Sclerosis Foundation Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Multiple Sclerosis Views and News Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Aids Treatment Advocacy Project Patient / public education and awareness on disease |
Pharma |
| National Alliance For Caregiving General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Alliance on Mental Illness - NAMI Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Breast Cancer Coalition Fund General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Coalition for Cancer Survivorship Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Coalition for Women with Heart Disease Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Family Caregivers Patient / public education and awareness on disease |
Pharma |
| National Forum for Heart Disease and Stroke Prevention General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Foundation for Infectious Diseases Patient / public education and awareness on disease |
V&D |
| National Health Council Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Kidney Foundation Patient / public education and awareness on disease |
Pharma |
| National Kidney Foundation Of Illinois Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Kidney Foundation of Michigan General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Kidney Foundation of Nebraska General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Meningitis Association (NMA) General support of activities incl. fund raising, advocacy, membership, etc. |
V&D |
| National Minority Quality Forum Patient / public education and awareness on disease |
Pharma |
| National Multiple Sclerosis Society Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Multiple Sclerosis Society General support of activities incl. fund raising, advocacy, membership, etc. |
Sandoz |
| National Multiple Sclerosis Society - Various State Chapters Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Organization for Rare Disorders General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Osteoporosis Foundation Patient / public education and awareness on disease |
Pharma |
| National Parkinson Foundation Patient / public education and awareness on disease |
Pharma |
| National Psoriasis Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| National Society to Prevent Blindness/Prevent Blindness America General support of activities incl. fund raising, advocacy, membership, etc. |
Alcon |
| National Tuberous Sclerosis Association Grant for research and development activities. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Nebraska Kidney Association General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| New Jersey Foundation For Aging General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| New Jersey Foundation for the Blind Patient / public education and awareness on disease |
Pharma |
| New Jersey Mental Health Institute Patient / public education and awareness on disease |
Pharma |
| NJ Sharing Network Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Northridge Foundation For Neurological Research Education Patient / public education and awareness on disease |
Pharma |
| Northwest Parkinson's Foundation Patient / public education and awareness on disease |
Pharma |
| Ovations for the Cure Patient / public education and awareness on disease |
Pharma |
| Pancreatic Cancer Action Network Services provided by a third party e.g. communication |
Pharma |
| Parkinson Research Foundation Patient / public education and awareness on disease |
Pharma |
| Parkinson Unity Walk General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Pathways For Exceptional Children General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Patient Advocate Foundation Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Pheo Alliance General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Prevent Blindness Texas Support of patient assistance programs. General support of activities incl. fund raising, advocacy, membership, etc. |
Alcon |
| Prevent Blindness Texas - Fort Worth Region General support of activities incl. fund raising, advocacy, membership, etc. |
Alcon |
| Prevent Cancer Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Pulmonary Hypertension Association Patient / public education and awareness on disease |
Pharma |
| Respiratory Health Association Patient / public education and awareness on disease |
Pharma |
| Rocky Mountain Multiple Sclerosis Center Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Ronald Mcdonald Children's Hospital Of Loyola University Medical Center Research grants incl. clinical trials, registries, health outcome research |
Pharma |
| Scleroderma Research Foundation Patient / public education and awareness on disease |
Pharma |
| Share Selfhelp For Women With Breast Or Ovarian Cancer General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Sharsheret General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Sickle Cell Disease Association of America Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Sisters Network Patient / public education and awareness on disease |
Pharma |
| Sisters Network of Central New Jersey Patient / public education and awareness on disease |
Pharma |
| Special Olympics of Massachusetts General support of activities incl. fund raising, advocacy, membership, etc. |
NIBR |
| Support Connection General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Susan G Komen Breast Cancer Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Susan G Komen Breast Cancer Foundation Central and South Jersey General support of activities incl. fund raising, advocacy, membership, etc. |
Sandoz |
| Susan G. Komen Breast Cancer Foundation Central South Jersey General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Susan G. Komen Foundation - Philadelphia Affiliate General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Tarrant County Association for the Blind General support of activities incl. fund raising, advocacy, membership, etc. |
Alcon |
| Team Donate Life Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| The American Liver Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| The Arizona Partnership for Immunization Patient / public education and awareness on disease |
V&D |
| The Association For Frontotemporal Degeneration Patient / public education and awareness on disease |
Pharma |
| The Carcinoid Cancer Foundation, INC. Services provided by a third party e.g. communication |
Pharma |
| The Chemotherapy Foundation Patient / public education and awareness on disease |
Pharma |
| The Gynecologic Oncology Group Research grant. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| The J.A.M.I.E Group Consultancy, speaker services |
V&D |
| The Lam Foundation Patient / public education and awareness on disease |
Pharma |
| The Leukemia and Lymphoma Society Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| The Life Raft Group Research grant. Patient / public education and awareness on disease |
Pharma |
| The Max Foundation Research grant. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| The Myelodysplastic Syndromes Foundation Patient / public education and awareness on disease |
Pharma |
| The National Fragile X Foundation Patient / public education and awareness on disease |
Pharma |
| The Sarcoma Foundation of America Patient / public education and awareness on disease |
Pharma |
| The Valerie Fund General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| TJ Martell Foundation General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Transplant Foundation Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Transplant Games Of America General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| United Network for Organ Sharing Research grant. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Uniting Against Lung Cancer General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| US COPD Coalition General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Vhl Family Alliance General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| WOMENHEART Patient / public education and awareness on disease |
Pharma |
| Y-Me National Breast Cancer Organization Patient / public education and awareness on disease |
Pharma |
| Young Japanese Breast Cancer Network Patient / public education and awareness on disease |
Pharma |
| Young Survival Coalition Patient / public education and awareness on disease |
Pharma |
