Patient group support
Novartis interacts with many patient groups. These groups play a crucial role by informing and supporting patients, as well as safeguarding the rights of patients and caregivers. Further, patient groups provide pharmaceutical companies with important advice from their own perspective. Interacting with patient organizations enables Novartis to learn about unmet patient needs, and this information can guide us in the development of new medicines. In all our interactions with patient groups, we are committed to working ethically and transparently while respecting their integrity. With regards to the disclosure of patient group support, Novartis is fully compliant with all legal and statutory requirements as a minimum standard in a given country.
We commit to disclose the names of patient groups that have received funding or non-monetary support from Novartis as well as the purpose of this support in the US and for international groups. This list is updated annually. As member of the European Federation of Pharmaceutical Industries and Associations (EFPIA), Novartis is complying with the amended (June 2011) Code of Practice on Relationships between the Pharmaceutical Industry and Patient Organizations and is thus disclosing the monetary value of its support to European patient organizations in EFPIA-member countries during the year 2012. Novartis fully recognizes that it has many common interests with patient organizations which represent and/or support the needs of patients and/or caregivers. Novartis endorses the EFPIA Code ensuring that its relationships with patient organizations take place in an ethical and transparent manner.
| Patient Group Name and purpose of support | Division |
|---|---|
| AMD Alliance International General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Aplastic Anemia & MDS International Foundation Patient / public education and awareness on disease |
Pharma |
| Confederation of Meningitis Organizations Inc. Support educational activities for World Meningitis Day. General support of activities incl. fundraising, advocacy, membership, etc. |
V&D |
| COPD Foundation Patient / public education and awareness on disease |
Pharma |
| GIST Support International Patient / public education and awareness on disease |
Pharma |
| International Myeloma Foundation Patient / public education and awareness on disease. General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| International Pediatric Transplant Association General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| International Psoriasis Council Patient / public education and awareness on disease |
Pharma |
| Juvenile Diabetes Research Foundation - International Chapter General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Juvenile Diabetes Research Foundation-International Chapter General support of activities incl. fund raising, advocacy, membership, etc. |
NIBR |
| Lymphoma Coalition Patient / public education and awareness on disease |
Pharma |
| The Carcinoid Cancer Foundation Patient / public education and awareness on disease |
Pharma |
| The Life Raft Group Patient / public education and awareness on disease |
Pharma |
| The Life Raft Group-Latin American GIST Initiative General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| The Max Foundation Patient / public education and awareness on disease. Support participation to CML Horizons Congress |
Pharma |
| Tuberous Sclerosis Alliance General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
| Us Too International General support of activities incl. fund raising, advocacy, membership, etc. |
Pharma |
