Patient group support
Novartis interacts with many patient groups. These groups play a crucial role by informing and supporting patients, as well as safeguarding the rights of patients and caregivers. Further, patient groups provide pharmaceutical companies with important advice from their own perspective. Interacting with patient organizations enables Novartis to learn about unmet patient needs, and this information can guide us in the development of new medicines. In all our interactions with patient groups, we are committed to working ethically and transparently while respecting their integrity. With regards to the disclosure of patient group support, Novartis is fully compliant with all legal and statutory requirements as a minimum standard in a given country.
We commit to disclose the names of patient groups that have received funding or non-monetary support from Novartis as well as the purpose of this support in the US and for international groups. This list is updated annually. As member of the European Federation of Pharmaceutical Industries and Associations (EFPIA), Novartis is complying with the amended (June 2011) Code of Practice on Relationships between the Pharmaceutical Industry and Patient Organizations and is thus disclosing the monetary value of its support to European patient organizations in EFPIA-member countries during the year 2012. Novartis fully recognizes that it has many common interests with patient organizations which represent and/or support the needs of patients and/or caregivers. Novartis endorses the EFPIA Code ensuring that its relationships with patient organizations take place in an ethical and transparent manner.
EFPIA members
- Austria
Patient Group Name and purpose of support Amount LC Division Angehörige helfen Angehörigen (AhA)
Patient assistance: programs for patients and family members, disease and treatment informationEUR 1800 Pharma ARGE Niere Österreich
Patient / public education and awareness on disease: patients' eventEUR 500 Pharma Austrian Transplant Sports Federation ATSF
Patient / public education and awareness on disease: website updateEUR 1000 Pharma Cystische Fibrose Hilfe Österreich
Patient / public education and awareness on disease: annual meeting, printing educational material, lectures and patients' meetingsEUR 3150 Pharma GND-WNB Gesellschaft Nierentransplantierter und Dialysepatienten Wien/Niederösterreich/Burgenland
Patient / public education and awareness on disease: several patient eventsEUR 1500 Pharma help 4 you company Hilfestellung für Mitmenschen
Patient / public education and awareness on disease: patient events, workshopsEUR 2000 Pharma Hilfsgemeinschaft der Blinden und Sehschwachen Österreichs
Patient / public education and awareness on disease: website about AMD, DME; awareness day events for DMEEUR 34720 Pharma LOT Austria - österr. Selbsthilfegruppe für Langzeit-Sauerstofftherapie
Patient / public education and awareness on disease: project making the "lot-news" about COPD, information and treatmentEUR 2000 Pharma Morbus Cushing/Hypophysenadenom Austria
Consultancy services for the EU Pituitary Round Table discussion in Zurich 2012EUR 150 Pharma MS Gesellschaft Tirol
General support of activities: improvement of homepage, patient event in TyrolEUR 8400 Pharma MS Gesellschaft Tirol
Patient / public education and awareness on disease: video for better understanding of MSEUR 12000 Pharma MS Gesellschaft Wien
Patient / public education and awareness on disease: patients' events (2) with lectures and workshopEUR 8100 Pharma Multiple Sklerose Gruppe Neusiedl/See
Patient / public education and awareness on disease: patients' events with lecturesEUR 400 Pharma Multiple Sklerose Selbsthilfe Gruppe Leoben
Patient / public education and awareness on disease: patients' events with lecturesEUR 500 Pharma Multiple Sklerose Selbsthilfegruppe Mistelbach
Patient / public education and awareness on disease: patients' events with lecturesEUR 700 Pharma Nephro Tirol
Patient / public education and awareness on disease: two patients' symposiumEUR 2800 Pharma ÖDV Österreichische Diabetes Vereinigung
Patient / public education and awareness on disease: two patients' events, two awareness Day campaigns, educational events for adults and childrenEUR 14880 Pharma Österreichischer Verband der Herz- und Lungen-Transplantierten
Patient / public education and awareness on disease: disease and treatment informationEUR 2000 Pharma Parkinson Selbsthilfegruppe Oberösterreich
Patient / public education and awareness on disease: disease and treatment information; 25th anniversary event, lectures, patients' guideEUR 1350 Pharma Prostatakrebs Selbsthilfe Gruppe Tirol
General support of activities: infrastructureEUR 2500 Pharma Prostatakrebs Selbsthilfe Gruppe Tirol
Patient / public education and awareness on disease: patients' symposiumEUR 3000 Pharma Verein der Dialysepatienten und Nierentransplantierten Oberösterreich
Patient / public education and awareness on disease: patients' event; awareness campaignEUR 2500 Pharma Verein Lebertransplantierte Österreich
Patient / public education and awareness on disease: patients' eventsEUR 1000 Pharma - Belgium
Patient Group Name and purpose of support Amount LC Division AB Drepa (association belge des drépanocytaires)
General support of activities: infrastructureEUR 500 Pharma Action-Drépanocytose
Patient / public education and awareness on diseaseEUR 1500 Pharma Association Belge de la Thalassémie (ABT)
Patient / public education and awareness on disease: workshopEUR 384 Pharma Association Nationale des Greffés Cardiaques et Pulmonaires asbl - ANGCP
Patient / public education and awareness on disease: information campaignEUR 300 Pharma Association Parkinson asbl
General support of activities: World Parkinson's day & nursing home campaignEUR 4500 Pharma Centrum ZitStil vzw
Patient / public education and awareness on disease: patient awareness dayEUR 10000 Pharma Expertisecentrum dementie Vlaanderen
Patient / public education and awareness on disease: awareness program 'music for life' eventEUR 4170 Pharma Ligue Belgue de la Sclérose en Plaques Communauté Française
Patient / public education and awareness on disease: programs for patients and caregiversEUR 20000 Pharma Ligue Braille asbl-vzw
Patient / public education and awareness on disease: Newsletter and sensibilisation campaign for eye diseases for elderlyEUR 85723 Pharma MS Liga Vlaanderen
Patient / public education and awareness on disease: Machu Pichu project on disease awarenessEUR 10000 Pharma NET & MEN KANKER vzw
General support of activities: infrastructureEUR 2000 Pharma Oostrozebeekse Transplantkring
Patient / public education and awareness on disease: organization of patients' eventEUR 250 Pharma RaDiOrg.be
General support of activities: infrastructureEUR 6163 Pharma TDA/H Belgique (Trouble Déficitaire de l'Attention/Hyperactivité)
Patient / public education and awareness on disease: printed materialEUR 3500 Pharma Vlaamse parkinsonliga
Patient / public education and awareness on disease: Parkinson Day 2012.EUR 4500 Pharma - Bulgaria
Patient Group Name and purpose of support Amount LC Division Asociacija na bolnite s acromegalia v Bulgaria "Nadezhda za zhivot"" (ABAB)
Patient / public education and awareness on disease: seminars, educational brochures. Assistance for examinations and tests to acromegaly patients.BGN 6000 Pharma Asociacija"Mukoviscidoza"
Congress attendance of two representatives at 35th European Cystic Fibrosis Conference, in Dublin, JuneBGN 1000 Pharma Asociacija"Mukoviscidoza"
Patient / public education and awareness on disease: European day of Rare DiseasesBGN 1000 Pharma Asociacija"Mukoviscidoza"
General support of activities: annual meeting in Plovdiv, SeptBGN 5000 Pharma Asociaciya na pacienti s oncologichni zabolijavanija i priateli (APOZ)
Services provided by a third party for the participation to a Novartis-sponsored advisory boardEUR 500 Pharma Asociaciya na pacienti s oncologichni zabolijavanija i priateli (APOZ)
Patient assistance: psychological support "Infocenter+"BGN 4000 Pharma Asociaciya na pacienti s oncologichni zabolijavanija i priateli (APOZ)
Patient / public education and awareness on disease: Zebra campaignUSD 8388 Pharma Asociaciya na pacienti s oncologichni zabolijavanija i priateli (APOZ)
Patient / public education and awareness on disease: several projects 1) campaign "A women goes to the doctor" for the prevention of breast cancer; 2) project "Communicational center for patients"; 3) project "TV channel For Health"; 4) project "Words cure, doctors"; 5) World Day for Neuroendocrine TumorsBGN 20800 Pharma Asociaciya na pacienti s oncologichni zabolijavanija i priateli (APOZ)
Congress attendance for the association's chair: 2012 World Cancer Congress, Montreal, Canada, August 2012 ; 6th EBMT Patient and Family Day, March 2012, Geneva, Switzerland; 8th European Breast Cancer Conference (EBCC-8) March 2012, Vienna, AustriaBGN 5883 Pharma Asociaciya na pacienti s oncologichni zabolijavanija i priateli (APOZ)
Patient / public education and awareness on disease: educational campaign (June - November) to mark The World Day for NET awareness; website about NET tumors; calendarsBGN 9900 Pharma Asociaciya na pacientite s bubrechni zaboljavanija i priateli (APBZ)
Patient / public education and awareness on disease: forum for patients with renal diseases in Velingrad, documentary movie about the life of the transplanted patient, video on organ donation, documentary movie about transplantation success in SpainBGN 13000 Pharma Fondaciya "Mnozhestvena skleroza (MS) Obshtestvo - Bulgaria"
Congress attendance to EPMS congress in Barcelona, Spain, May 2012 and to International MS Patient Summit - Living and Working with MS, in Zurich, May 2012BGN 9090 Pharma Fondaciya "Mnozhestvena skleroza (MS) Obshtestvo - Bulgaria"
Patient / public education and awareness on disease: National MS meeting in Varna, Dec 2012, World MS Day in MayBGN 7200 Pharma Grazhdansko sdruzhenie "Altshaimer Bulgaria"
Patient / public education and awareness on disease: educational seminar on dementias in Dec 2012BGN 1000 Pharma Natsionalna patsientska organizatsiya (NPO)
Patient / public education and awareness on disease: Second National congress of patient organizations in June 2012BGN 20000 Pharma Natsionalna patsientska organizatsiya (NPO)
General support of activities: First International Conference on health inequalities in the new EU Member States held in Sofia in Sept 2012BGN 39200 Pharma Organizatsiya na talasemicite v Bulgaria
General support of activities: memberships, infrastructure, annual general meetingBGN 8000 Pharma Organizatsiya na talasemicite v Bulgaria
Patient assistance: medical tests, transportation, children living in care institutions, socially disadvantaged patients - four programsBGN 8500 Pharma Organizatsiya na talasemicite v Bulgaria
Patient / public education and awareness on disease: several local patients educational meetings, International Rare Diseases Day events in different cities (Feb), International Thalassemia Day events, patient diary for treatment compliance.BGN 17510 Pharma Organizatsiya na talasemicite v Bulgaria
Congress attendance: 10 members to "Third Pan-European Conference on Hemoglobinopathies and Rare Anemia's"; chairperson to Board of Directors of TIF in LondonBGN 17100 Pharma Sdruzhenie "Galateya"
Patient / public education and awareness on disease: local information events in Pleven region, educational material "Manual for Oncopatients and Their Families"BGN 1800 Pharma Алианс на трансплантираните и оперираните - АТО "Бъдеще за всички"
Patient / public education and awareness on disease: roundtable on the importance of organ donation in St. Ekaterina Hospital - Sofia, Oct 2012BGN 1000 Pharma Асоциация "Хипофиза"
Patient assistance: psychological support to patients with rare diseases treated at University Hospital "St. Marina" in Varna. Educational support for website.BGN 1500 Pharma Българска анти таласемична организация (БАТО)
Congress attendance: 2 members at Third Pan European Conference on Haemoglobinopathias and Rare Anemias, Sofia, Oct 2012BGN 5435 Pharma Български Съюз на Трансплантираните
General support of activities: organization of IV National Games for Transplanted patients in Sofia, AprilBGN 3000 Pharma Български Съюз на Трансплантираните
Congress attendance: participation in the VII European Games for Transplanted patients in Zagreb, Croatia (August)BGN 2000 Pharma Българско общество на Пациентите с Пулмонална Хипертония
Patient / public education and awareness on disease: website supportBGN 1500 Pharma Конфедерация "Защита на здравето"
Congress attendance: 4 members in First Eurasian Conference on Rare Diseases & Orphan Products and Third All-Russian Conference for Rare Diseases and Rarely Used Medical Technologies "Lifeline" in Moscow, June 2012BGN 7823 Pharma Нацинален алианс на хора с редки болести
Congress attendance: participation in 3rd Annual Orphan Drugs Conference, London, UK; chairperson participation in ICORD 2012 Conference, Tokyo, Japan ; participation at conference on "Development of eHealth in Europe - increasing patient influence, support of health professionals" Brussels, BelgiumBGN 7040 Pharma Нацинален алианс на хора с редки болести
Patient / public education and awareness on disease: national conference on Rare Diseases in Plovdiv, patient meeting "Together for Success" in Sofia, press conference "Problems and achievements in tackling rare diseases" on Rare Diseases Day, printed material.BGN 23500 Pharma Национална асоциация на трансплантираните
Patient / public education and awareness on disease: organization of International conference on the development of transplantation in Bulgaria -Sofia, MayBGN 1000 Pharma Национално сдружение с нестопанска цел на хора, страдащи от хронична миелоидна левкемия" (НСНЦХСХМЛ)
Congress attendance: participation of 2 members in the Annual CML HORIZONS 2012 Meeting, Munich, Germany, MayBGN 4467 Pharma Национално сдружение с нестопанска цел на хора, страдащи от хронична миелоидна левкемия" (НСНЦХСХМЛ)
Patient / public education and awareness on disease: local patient meetings in Sofia and PlovdivBGN 3785 Pharma Национално сдружение с нестопанска цел на хора, страдащи от хронична миелоидна левкемия" (НСНЦХСХМЛ)
Patient assistance (financial, psycho-social, etc.): "Green patients line" projectBGN 5590 Pharma Сдружение за онкоболни и приятели - Пазарджик
Patient / public education and awareness on disease: October Breast cancer campaign - various educational initiatives; producing calendarsBGN 1900 Pharma Сдружение за онкоболни и приятели - Пазарджик
General support of activities: purchase of equipment for consulting room in Social Rehabilitation and Integration (CSRI) centerBGN 700 Pharma Сдружение на пациентите с ГИСТ в България
Patient / public education and awareness on disease: GIST website support, annual meeting, patient educational meeting with health professionals in MayBGN 6254 Pharma Сдружение на пациентите с ГИСТ в България
Congress attendance (registration, travel, accommodation, etc.): participation of 2 members in 3rd SPAEN Annual Conference for Organizations Representing Patients With Sarcomas, GIST or Desmoid-Tumours, Florence-Italy; participation of one member in a SPAEN seminar "Concept of the biology of sarcoma - cancer from the cells to the patient", FranceBGN 2934 Pharma Сдружение на пациентите с ГИСТ в България
Patient assistance (financial, psycho-social, etc.): reimbursement of contrast-enhanced ultrasonography for 4 patientsBGN 800 Pharma - Croatia
Patient Group Name and purpose of support Amount LC Division Hepatos Rijeka, Udruga liječenih i oboljelih od hepatitisa
Patient / public education and awareness on diseaseHRK 5000 Pharma Hrvatska donorska mreža
Patient / public education and awareness on disease: organization of ETCO congress in DubrovnikHRK 5000 Pharma Hrvatska druga transplant
Patient / public education and awareness on disease: educational workshopsHRK 5000 Pharma HULOH Hepatos
Patient / public education and awareness on disease: education materialHRK 5000 Pharma - Cyprus
Patient Group Name and purpose of support Amount LC Division Cyprus Association of Cancer Patients and Friends (PASYKAF)
General support of activities: fund raising activity to support patientsEUR 2000 Pharma EUROPA Donna Cyprus
Congress attendance: participation of two members at the 8th EU Breast Cancer Conference March 2012EUR 1800 Pharma EUROPA Donna Cyprus
Patient / public education and awareness on diseaseEUR 6000 Pharma Europa Uomo Cyprus
Patient / public education and awareness on disease: educational activities at Prostate cancer week in Feb 2012 and Scientific meeting in March 2012; participation to yearly assembly of the Pan European Coalition for Prostate Cancer, Nov 2012.EUR 6200 Pharma Pancyprian Antianemic Association
General support of activities: educational seminar at 2012 International Thalassemia Day, Support fundraising activities.EUR 4000 Pharma Αντιρευματικός Σύνδεσμος Κύπρου
Patient / public education and awareness on disease: 12th Annual Rheumatism week-May 2012 and Support the Rheumatism Day Oct-2012EUR 500 Pharma Κυπριακός Ερυθρός Σταυρός
Patient assistance: financial Support for children with severe development problems and disabilitiesEUR 6000 Pharma Παγκύπρια Οργάνωση Τυφλών (ΠΟΤ)
Indirect support: providing diagnostic equipmentEUR 16500 Pharma Παγκύπρια Οργάνωση Τυφλών (ΠΟΤ)
Patient / public education and awareness on disease: educational activitiesEUR 1000 Pharma Παγκύπριος Σύνδεσμος Πολλαπλής Σκλήρυνσης
Patient / public education and awareness on disease: MS awareness events in May-June 2012 and participation at the International MS Patient Summit, Zurich, CHEUR 6032 Pharma Παγκύπριος Σύνδεσμος Φίλων Νεφροπαθών
Patient / public education and awareness on disease: educational flyersEUR 288 Pharma - Czech Republic
Patient Group Name and purpose of support Amount LC Division AA klub Homolka - sdružení na pomoc chronicky nemocným dětem
Patient assistance: therapeutic stay at the sea for children with asthma and allergy.CZK 50000 Pharma Algesia, o.s.
Patient assistance: Project JakoJa for a social networking for patients with various diseasesCZK 85000 Pharma Diagnóza CML, o.s.
Patient / public education and awareness on disease: "What´s my numbers?" campaign in PragueCZK 100000 Pharma Klub nemocných cystickou fibrózou
Patient assistance: Support for purchase of medical equipment (oxygen concentrator) for patients with cystic fibrosisCZK 30519 Pharma Liga proti rakovině Praha
Patient assistance: educational DVD to increase legal awareness on patient-related legislatureCZK 400000 Pharma MS Unie Roska
Patient / public education and awareness on disease: educational events at MS World´s dayCZK 120000 Pharma Neziskovky.cz
Paid Training services: expert training in two modules on financial management and public communication strategies for Czech patient advocacy groups.CZK 200000 Pharma Onko Unie
Patient / public education and awareness on disease: partnering project with key health insurance company on breast cancer awarenessCZK 200000 Pharma Společnost Parkinson
General support of activities: membership, association's magazineCZK 190000 Pharma Sružení mladých sklerotiků
Patient / public education and awareness on disease: educational brochure for newly diagnosed MS patients, organization of patient meetingCZK 90000 Pharma Svaz Diabetiků
Patient / public education and awareness on disease: organization of Festival of Diabetes and publication of brochures for patientsCZK 15000 Pharma VŠTJ MEDICINA PRAHA
Patient assistance: support the purchase of equipment in new center in Czech Budejovice and updating equipment in centers in Mlada Boleslav and Prague for patients with diabetesCZK 130000 Pharma ČAVO - Česká Asociace pro Vzácná Onemocnění
General support of activities: creation of websiteCZK 48250 Pharma ČIPA - Česká iniciativa pro astma
Patient / public education and awareness on disease: educational events - seminars for kids and teachers on allergy and asthmaCZK 200000 Pharma ČOPN (České občanské sdružení proti chronické obstrukční plicní nemoci)
General support of activities: COPD Day, workshops, communication and PR campaign on TV and Radio, World Spirometry DayCZK 160000 Pharma - Denmark
Patient Group Name and purpose of support Amount LC Division Danmarks Psoriasis Forening
Patient / public education and awareness on diseaseDKK 25000 Pharma DBO De Brystopererede
Congress attendance: Breast Cancer ConferenceDKK 20000 Pharma DBO De Brystopererede
Patient / public education and awareness on disease website supportDKK 50000 Pharma Hjerte- og lungetransplantationsklubben
Patient / public education and awareness on disease: program Hjerteforeningen and Nova Vita magazineDKK 10000 Pharma Landsforeningen til bekæmpelse af Cystisk FIbrose
Patient / public education and awareness on disease: websiteDKK 40000 Pharma Levernyt
Patient / public education and awareness on disease: magazine supportDKK 15000 Pharma LYLE patient forening for lymfom og leukæmi
General support of activitiesDKK 200000 Pharma Nyreforeningen
Patient / public education and awareness on disease: website and magazineDKK 23250 Pharma Patientforeningen for Neuroendokrine Tumor Patienter i Danmark - NETPA.dk
General support of activities: International NET dayDKK 100000 Pharma Patientforeningen for prostata kræft
General support of activities: organization of meetingDKK 50000 Pharma PV-The Association of Polycythemia Vera in Denmark
Consultancy services for Myelofibrosis Advocates Advisory Board Meeting in Milano, January 2012 and Myelofibrosis Advocates Business Dinner in Amsterdam, June 2012EUR 3693 Pharma Sjaeldne Diagnoser
Patient / public education and awareness on disease: websiteDKK 12500 Pharma - Estonia
Patient Group Name and purpose of support Amount LC Division Eesti Kopsuliit
Patient / public education and awareness on disease: activities to increase awareness of COPDEUR 512 Pharma Eesti Leukeemia –ja Lümfoomihaigete Liit
Congress attendance: 2 members attending CML Horizon 2012 International Meeting for Organizations representing People with CML, May 2012)EUR 2141.18 Pharma Eesti Leukeemia –ja Lümfoomihaigete Liit
Patient / public education and awareness on disease : educational material, organization of annual patient meetingEUR 4000 Pharma Eesti Osteoporoosihaigete Liit
Patient / public education and awareness on disease: osteoporosis awareness campaignEUR 3600 Pharma Eesti Tsüstilise Fibroosi Ühing
Patient / public education and awareness on disease: winter school for CF patientsEUR 2000 Pharma Eesti Vähiliit
General support of activities: Annual sponsorship, Charity event "Rare Cancers in adult and children"EUR 11920 Pharma Eesti Vähiliit
Patient / public education and awareness on disease: conferenceEUR 2800 Pharma MTÜ Sclerosis Multiplexi Ühing
Patient / public education and awareness on disease: training programs for patients, MS Day organizationEUR 2960 Pharma - Finland
Patient Group Name and purpose of support Amount LC Division Diabetesliitto
General support of activitiesEUR 6275 Pharma Espoon, Helsingin ja Vantaan reumayhdistykset
General support of activitiesEUR 354 Pharma Etelä-Karjalan Muisti ry
General support of activitiesEUR 170 Pharma Etelä-Pohjanmaan Muistiyhdistys ry
Patient / public education and awareness on diseaseEUR 300 Pharma Helsingin Alzheimeryhdistys
General support of activitiesEUR 25 Pharma Keski-Suomen Muistiyhdistys ry
Patient / public education and awareness on diseaseEUR 2000 Pharma Muistiliitto ry
Services provided by a third partyEUR 5492.6 Pharma Munuais- ja maksaliitto ry
General support of activitiesEUR 5050 Pharma Oulun Seudun Muistiyhdistys ry
Patient / public education and awareness on diseaseEUR 2000 Pharma Suomen eturauhassyöpäyhdistys ry
Patient / public education and awareness on disease: organization of open educational lecture eventEUR 3000 Pharma Suomen MS-liitto ry
Patient / public education and awareness on diseaseEUR 18050 Pharma Suomen Syöpäpotilaat ry
Patient / public education and awareness on disease: production of patient guidelinesEUR 36648 Pharma Sydän- ja keuhkosiirrokkaat
Patient / public education and awareness on diseaseEUR 3000 Pharma Varsinais-Suomen Muistiyhdistys ry
Patient / public education and awareness on diseaseEUR 1502 Pharma - France
Patient Group Name and purpose of support Amount LC Division Aide aux malades et Lutte contre la Thrombocytémie Essentielle (ALTE)
Patient / public education and awareness on disease: Information book on myeloproliferative syndromesEUR 10000 Pharma Aide aux malades et Lutte contre la Thrombocytémie Essentielle (ALTE)
Services provided by a third party: management skills trainingEUR 3126 Pharma Aide aux malades et Lutte contre la Thrombocytémie Essentielle (ALTE)
Consultancy, speaker services: Myelofibrosis Advocates Advisory Board Meeting, Milano, January 2012 and Amsterdam, June 2012EUR 2150 Pharma Association Carpe Diem 21
Patient assistance: supportive care, physical activity, nutrition, relaxationEUR 2000 Pharma Association contre les maladies rares du péritoine (AMARAPE)
General support activities: communication materials (website)EUR 5000 Pharma Association contre les maladies rares du péritoine (AMARAPE)
Services provided by a third party: management skills trainingEUR 4689 Pharma Association des Patients porteurs de Tumeurs Endocrines Diverses (APTED)
Services provided by a third party: management skills trainingEUR 3126 Pharma Association des Patients porteurs de Tumeurs Endocrines Diverses (APTED)
General support of activities: annual meeting and communication materialEUR 10000 Pharma Association Empreintes de Vie
Patient assistance: projects dedicated to hospitalized patients suffering from cancerEUR 6000 Pharma Association Française de Lutte Antirhumatismale (AFLAR)
Patient / public education and awareness on disease: support program to help improve compliance with treatmentsEUR 126000 Pharma Association Française des Sclérosés en Plaques (AFSEP)
General support of activities: trainingEUR 15000 Pharma Association Française du Gougerot-Sjögren et des Syndomes Secs (AFGS)
Research grantEUR 1500 Pharma Association France Alzheimer
General support of activities: annual meetingEUR 15000 Pharma Association France Parkinson
General support of activities: annual meetingEUR 30000 Pharma Association Le LIEN
General support of activities: annual meetingEUR 20000 Pharma Association les 343
Patient assistance: educational support to patient's childrenEUR 10000 Pharma Association Notre Sclérose
General support of activities: communication tools (brochures, flyers, poster), websiteEUR 10000 Pharma Association Petit Ange
Patient / public education and awareness on disease: video with patient testimonyEUR 16000 V&D Association pour la Recherche sur les Tumeurs Cérébrales (ARTC)
Services provided by a third party: management skills trainingEUR 3126 Pharma Association Regis 76
Patient / public education and awareness on disease; patient's leaflets and postersEUR 7000 V&D Association Renaloo
General support of activities: organization of national meetings on the management of renal insufficiency.EUR 30000 Pharma Association Sclérose Tubéreuse de Bourneville
Services provided by a third party: management skills trainingEUR 1563 Pharma Association Sclérose Tubéreuse de Bourneville
General support of activities: website and patient education's materialsEUR 30000 Pharma Association Surrénales
General support of activities: communication material, association's meetingsEUR 10000 Pharma Association Trans-Forme
General support of activities: Participation to "XVIV World Transplant Games", in Switzerland, March 2012 - "European Transplant Games", in Zagreb, August 2012 and "National Transplant Games" in Trélazé, France, October 2012.EUR 4000 Pharma Association Vivre Comme Avant
General support of activities: annual meetingEUR 5000 Pharma Collectif d'Associations Militant pour le don et la Greffe d'Organe en Bretagne (AMIGO Bretagne)
General support of activities: patients' meetingsEUR 5000 Pharma Collectif Plus Digne la Vie
General support of activities: development of communication tools around end of life.EUR 15000 Pharma Connaître et Combattre les myélodysplasies
Services provided by a third party: management skills trainingEUR 1563 Pharma Connaître et Combattre les myélodysplasies
General support of activities: communication material, annual patient's meetingEUR 35000 Pharma Ensemble contre le GIST
General support of activities: communication material (brochure and website), annual patient's meetingEUR 20000 Pharma Etincelle
Patient assistance: psychological support to patients and their familiesEUR 9000 Pharma Europa Donna France
General support of activities: communication materialEUR 5000 Pharma Europa Donna France
Services provided by a third party: management skills trainingEUR 1563 Pharma Fédération des Associations de Diabétiques de Bourgogne (FADB)
General support of activities: organization of a meeting on diabetes for patients and caregiversEUR 5000 Pharma Jeunes Solidarité Cancer (JSC)
Patient / public education and awareness on disease: patient brochureEUR 5000 Pharma LMC France
Congress attendance: 2 representatives attending CML Horizon 2012 International Meeting for Organizations representing People with CML, May 2012)EUR 2730 Pharma LMC France
Patient / public education and awareness on disease: patient brochure on PCREUR 13000 Pharma LMC France
Consultancy at CML Advocates Advisory Board Meeting, Milano, Italy, November 2012EUR 2060 Pharma Méningite France - Association Audrey
Patient / public education and awareness on disease: conference for World Meningitis Day; HECON project: "Counting the Costs"EUR 69500 V&D Méningite France - Association Audrey
Services provided by a third party: Social media workshops (2) - trainingEUR 8500 V&D Retina France
General support of activities: meetings, training, disease awareness actions for the general public, information services for patients and caregivers.EUR 60000 Pharma Vaincre la Mucoviscidose
General support of activities: annual meeting, disease awareness actions and physiotherapy training for patients and their families.EUR 50000 Pharma VHL France (Von Hippel-lindau)
Services provided by a third party: management skills trainingEUR 3126 Pharma - Germany
Patient Group Name and purpose of support Amount LC Division Allergie-, Neurodermitis- und Asthmahilfe Hessen e.V.
General support of activities: meetingsEUR 400 Pharma Allergie-, Neurodermitis- und Asthmahilfe Thüringen (ANAT) e.V.
Services provided by a third party: presentationsEUR 1190 Pharma Allianz chronischer seltener Erkrankungen
General support of activitiesEUR 7490 Pharma Alzheimer Angehörigen Initiative e.V..
General support of activities: meetingsEUR 500 Pharma Alzheimer Gesellschaft Essen e.V.
Patient / public education and awareness on disease: lecturesEUR 2100 Pharma Alzheimer Gesellschaft e.V. Düsseldorf & Kreis Mettmann
Patient / public education and awareness on diseaseEUR 500 Pharma Ambet e.V. Ambulante Betreuung Hilfs- und Pflegebedürftiger Menschen
Patient / public education and awareness on diseaseEUR 850 Pharma Amsel e.V., Landesverband der DMSG, Stuttgart
General support of activitiesEUR 71400 Pharma Arbeitskreis Herztransplantation e.V., Freiburg
Patient / public education and awareness on disease: meetingsEUR 1500 Pharma Arbeitskreis Transplantationspflege e.V. (AKTX-Pflege)
Patient / public education and awareness on disease: meetingsEUR 3500 Pharma Bayerischer Blinden- u. Sehbehindertenbund e.V. (BBSB)
Patient / public education and awareness on disease: 4 newsletters to members, consultancy feesEUR 5797.3 Pharma Bundesarbeitsgemeinschaft Selbsthilfe von Menschen mit Behinderung und chronischer Erkrankung und ihren Angehörigen e.V.
General support of activitiesEUR 5000 Pharma Bundesorganisation Selbsthilfe NeuroEndokrine Tumoren e. V. (BS-NET e.V.)
Patient / public education and awareness on diseaseEUR 5000 Pharma Bundesverband der Organtransplantierten e.V. (BDO)
Patient / public education and awareness on disease: meetingsEUR 350 Pharma cf-initiative-aktiv e.V.
General support of activities.EUR 2000 Pharma CF-Selbsthilfe Duisburg Essen e.V
General support activities: meetingsEUR 500 Pharma CF-Selbsthilfe Frankfurt e.V
Patient / public education and awareness on disease: meetingsEUR 500 Pharma COPD Deutschland e.V.
General support of activities: membership, support of "Symposium Lunge"EUR 7499 Pharma Das Lebenshaus - GIST e.V.
Patient / public education and awareness on disease: patient material, website, regional meetings and national meetingEUR 74938.5 Pharma Das Lebenshaus - Nierenzellkarzinom e.V.
Patient / public education and awareness on disease: patient material, regional meetings and national meetingEUR 20000 Pharma Deutsche Alzheimer Gesellschaft e.V.
Services provided by a third party: communicationEUR 2439.5 Pharma Deutsche Multiple Sklerose Gesellschaft (DMSG) e.V., Bayern
Patient / public education and awareness on disease: regional activitiesEUR 833 Pharma Deutsche Multiple Sklerose Gesellschaft (DMSG) e.V., Brandenburg
General support of activities.EUR 5000 Pharma Deutsche Multiple Sklerose Gesellschaft (DMSG) e.V., Hamburg
General support of activities: meetingsEUR 1785 Pharma Deutsche Multiple Sklerose Gesellschaft (DMSG) e.V., Landesverband Hessen
General support of activities: meetingsEUR 2380 Pharma Deutsche Multiple Sklerose Gesellschaft (DMSG) e.V., Landesverband Thüringen
Patient / public education and awareness on diseaseEUR 2500 Pharma Deutsche Multiple Sklerose Gesellschaft (DMSG) e.V., Mecklenburg Vorpommern
Patient / public education and awareness on diseaseEUR 5950 Pharma Deutsche Multiple Sklerose Gesellschaft (DMSG) e.V., Niedersachsen
General support of activities on patient daysEUR 4165 Pharma Deutsche Multiple Sklerose Gesellschaft (DMSG) e.V., Schleswig-Holstein
General support of activities on patient daysEUR 1300 Pharma Deutsche Parkinson Vereinigung e.V. Bundesverband
General support of activities on patient day meetingsEUR 1284 Pharma Deutsche Rheuma-Liga Bundesverband e.V.
General support of activities.EUR 5000 Pharma Deutscher Allergie- und Asthmabund (DAAB) e.V.
General support of activities.EUR 3000 Pharma Deutscher Blinden- u. Sehbehindertenverband e.V. (DBSV)
General support of activities: project for monthly production of audible CDsEUR 47600 Pharma Deutscher Blinden- u. Sehbehindertenverband e.V. (DBSV)
Patient / public education and awareness on disease: speaker feesEUR 892.5 Pharma Deutscher Diabetiker-Bund e.V., Bundesorganisation
General support of activities: Leuchtturmseminar, patient's journal "subkutan", updating website, develop patient brochures, publication of health outcome research in book and homepage.EUR 65700 Pharma Deutscher Diabetiker-Bund e.V., Bundesorganisation
Research grant for DIADEM projectEUR 5700 Pharma Deutscher Psoriasis Bund
General support of activities: membership, travel costsEUR 346.6 Pharma Deutscher Psoriasis Bund
General support of activities incl. fund raising, advocacy, membership, etc.EUR 295.6 Pharma Elterninitiative für das seelisch erkrankte und verhaltensauffällige Kind e.V.
Patient / public education and awareness on diseaseEUR 450 Pharma Elternverein für Kinder mit CML e.V.
Patient / public education and awareness on disease: meetingsEUR 8000 Pharma Förderverein der Kinder- und Jugendreha Bad Gottleuba
Patient / public education and awareness on disease: speaker's feesEUR 399 Pharma Förderverein Kompetente Patientinnen gegen Brustkrebs e.V.
Patient / public education and awareness on disease: meetingEUR 750 Pharma fraX - Interessengemeinschaft für fragiles X-Syndrom e.V.
General support of activitiesEUR 70 Pharma FSME Netzwerk e.V.
General support of activities: meetingEUR 620 V&D Gemeinsam gegen Krebs e.V.
Patient / public education and awareness on disease: regional meetingsEUR 1000 Pharma Gemeinsam gegen Meningokokken e.V.
General support of activities: Communications, Kick-off meeting 2012, posters for World Meningitis Day, bannerEUR 774 V&D Interessengemeinschaft der Dialysepatienten und Nierentransplantierten in Bayern e.V.
General support of activities: meetingsEUR 200 Pharma Interessengemeinschaft der Dialysepatienten und Nierentransplantierten in Leipzig e.V.
General support of activities: meetingsEUR 50 Pharma Kompetenznetzwerk ADHS Südwestfalen
Patient / public education and awareness on disease: meetingsEUR 400 Pharma Lebertransplantierte Deutschland e. V.
Patient / public education and awareness on disease: patient Day meetingsEUR 6000 Pharma Lebertransplantierte Deutschland e. V. Kontaktgruppe Remscheid Sollingen
Services provided by a third party for association's meetingEUR 811.2 Pharma Leukämie-Online e.V.
Consultancy services: honorarium and expenses for the CML Advocates Advisory Board Meeting in Milano, Italy in November 2012EUR 2060 Pharma Leukämiehilfe Rhein-Main e.V.
Patient / public education and awareness on disease: meetingsEUR 3500 Pharma LeukämiehilfeMünchen e.V.
General support of activities: Communication/ Public relations, web supportEUR 5000 Pharma LeukaNet e.V.
Patient / public education and awareness on disease: CML World awareness day, website, newsletter, education materialEUR 47600 Pharma Mukoviszidose e.V. - Bundesverband Selbsthilfe bei Cystischer Fibrose (CF)
Patient assistance: donation of 14 nebulizers to support the Moldau projectEUR 2975 Pharma Mukoviszidose e.V. - Bundesverband Selbsthilfe bei Cystischer Fibrose (CF)
General support of activities: sponsorship, meetings, JournalEUR 29075.33 Pharma Mukoviszidose e.V. Regionalgruppe Hannover
General support of activities: meetingsEUR 595 Pharma Mukoviszidose e.V. Regionalgruppe Leipzig
General support of activities: meetingsEUR 400 Pharma Mukoviszidose e.V. Regionalgruppe Siegen
General support of activitiesEUR 297.5 Pharma Mukoviszidose e.V. Regionalgruppe Würzburg/ Schweinfurt
General support of activities: meetingsEUR 595 Pharma Mukoviszidose e.V., Regionalgruppe Neubrandenburg
General support of activities: meetingsEUR 1071 Pharma Mukoviszidose Landesverband Berlin-Brandenburg e.V.
General support of activities: meetings, JournalEUR 1190 Pharma Mukoviszidose Selbsthilfe-Regionalgruppe Heidelberg-Mannheim
General support of activities: meetingsEUR 595 Pharma Multiple Sklerose Kontaktgruppe Stadt- und Landkreis Osnabrück
Patient / public education and awareness on disease: regional meetingsEUR 500 Pharma Netzwerk für Neuroendokrine Tumoren (NET) e.V.
Patient / public education and awareness on disease: national and regional meetings, patient journal, website, educational materialEUR 23000 Pharma NETZWERK Hypophysen- und Nebennierenerkrankungen e.V.
Consultancy services for the EU Pituitary round table meeting Zurich 2012EUR 300 Pharma NETZWERK Hypophysen- und Nebennierenerkrankungen e.V.
Patient / public education and awareness on disease: meetings, workshops, web supportEUR 27000 Pharma Patienteninitiative Multiple Sklerose und Morbus Parkinson e.V.
Patient / public education and awareness on disease: meetingsEUR 3100 Pharma Patientenliga Atemwegserkrankungen e.V.
Services provided by a third party: patient journalEUR 5415.69 Pharma PKD - Familiär Zystennieren e.V.
General support of activities: meetingsEUR 500 Pharma PRO RETINA Deutschland e.V.
Services provided by a third party for 17th Retina international World CongressEUR 11900 Pharma PRO RETINA Deutschland e.V.
Patient / public education and awareness on disease: web development and supportEUR 32100 Pharma PRO RETINA Deutschland e.V.
General support of activities: travel costsEUR 143 Pharma Selbsthilfe Organtransplantierter NRW
Services provided by a third party for association's meetingEUR 870 Pharma Selbsthilfegruppe für Hypophysen- und Nebennierenerkrankte in Mainz und Umgebung e.V.
Patient / public education and awareness on disease: meetingEUR 500 Pharma Selbsthilfegruppe für Hypophysen- und nebennierenerkrankungen Rhein-Main-Neckar e.V.
Patient / public education and awareness on disease: meeting, workshopEUR 750 Pharma Selbsthilfegruppe Rhein-Neckar
Patient / public education and awareness on disease: awareness campaign "Bewahren Sie Ihr Augenlicht" and patient meetingsEUR 1250 Pharma SHG Hof Frauenkrebs e.V.
Patient / public education and awareness on disease: meetingEUR 600 Pharma TransDia e.V.
Patient / public education and awareness on disease: meetingsEUR 4760 Pharma - Greece
Patient Group Name and purpose of support Amount LC Division The Greek Alliance Of Rare Disease
Consultancy services for the EU Pituitary round table meeting Zurich 2012EUR 150 Pharma Αρμονία: Συλλογος Φίλων Ασθενών με Πρωτοπαθείς Ανοσοανεπάρκειες & Παιδιατρικής Ανοσολογίας
Patient / public education and awareness on disease: educational material entitled "Our Immune System" by Sara LeBienEUR 1500 Pharma ΕΛΛΗΝΙΚΗ ΕΤΑΙΡΕΙΑ ΟΖΩΔΟΥΣ ΣΚΛΗΡΥΝΣΕΩΣ
Patient / public education and awareness on disease: development of 3 information leaflets for TSC patients and caregivers as well as the general publicEUR 7000 Pharma ΕΤΑΙΡΙΑ ΠΡΟΣΤΑΣΙΑΣ ΠΑΣΧΟΝΤΩΝ ΑΠΟ ΜΕΣΟΓΕΙΑΚΗ ΑΝΑΙΜΙΑ Ν. ΑΡΤΑΣ
Patient / public education and awareness on disease: educational symposium for patients and their familiesEUR 5000 Pharma Ελληνική Ενωση για την Αντιμετώπιση της σκλήρυνσης κατά Πλάκας
Patient / public education and awareness on disease: educational event at the MS World DayEUR 3500 Pharma Ελληνική Εταιρία για την Σκλήρυνση κατά Πλάκας
Patient / public education and awareness on disease: educational event at the MS World DayEUR 9900 Pharma Ελληνική Εταιρία για την Σκλήρυνση κατά Πλάκας
Patient / public education and awareness on disease: educational events in North Greece, development & distribution of one issue of the journal " MS Enimerosi"EUR 15000 Pharma Ελληνική Εταιρεία Νόσου Alzheimer και Συγγενών Διαταραχών
Patient assistance: day centers for patients and their caregivers to improve Quality of Life - educational material for caregivers and publicEUR 14000 Pharma Ελληνική Ομοσπονδία Θαλασσαιμίας
Services provided by a third party for Awareness event of World Thalassemia Day, purchase of chairs for blood donation/transfusion for thalassemia unitsEUR 37060 Pharma Ελληνική Ομοσπονδία Θαλασσαιμίας
General support of activities: organization of meetings, activities on blood donation, assessment of thalassemia units, participation in committeesEUR 50000 Pharma Ελληνική Ομοσπονδία για το Διαβήτη, ΕΛΟΔΙ
Services provided by a third party: communication in 4 issues of journal entitled " sakharodis diabetes"EUR 4800 Pharma Ελληνικής Εταιρείας για τη Σκλήρυνση κατά Πλάκας, Τοπικό γραφείο Ιονίων Νήσων
Patient / public education and awareness on disease: educational event on disease management in June 2012EUR 3000 Pharma Επίκουρος- Μελέτη, Θεραπεία και Υποστήριξη Διαταραχών Νόησης και Κίνησης
Patient / public education and awareness on disease: 3rd annual educational event for Parkinson's' patients and their caregivers in October 2012EUR 3000 Pharma Εταιρεία Νόσου Alzheimer και Συναφών Διαταραχών Αθηνών
Patient / public education and awareness on disease: support of the Memory Walk during world Alzheimer's day.EUR 5000 Pharma Εταιρεία Νόσου Alzheimer και Συναφών Διαταραχών Αθηνών
Patient assistance: day centers for patients & caregivers, home care program for patients. Support Memory walk during World Day maintenance of website.EUR 10000 Pharma Εταιρεία Νόσου Alzheimer και Συναφών Διαταραχών Νομού Ηρακλείου « Αλληλεγγύη
Patient assistance: program of " Daily centers" offering patients and caregivers educational, social & psychological supportEUR 1500 Pharma Ομιλος Εθελοντών κατά του Καρκίνου "Αγκαλιάζω"
General support of advocacy activities: educational workshops addressing National Healthcare System, Social Security Funds, health economics, patient rights.EUR 25000 Pharma ΠΑΝΕΛΛΗΝΙΑ ΕΤΑΙΡΙΑ ΠΡΟΣΤΑΣΙΑΣ ΠΑΣΧΟΝΤΩΝ ΑΠΟ ΜΕΣΟΓΕΙΑΚΗ ΑΝΑΙΜΙΑ (ΠΕΠΠΑΜΑ)
Patient / public education and awareness on disease: educational symposium for thalassemia patients and parentsEUR 20000 Pharma ΠΑΝΕΛΛΗΝΙΟΣ ΣΥΛΛΟΓΟΣ ΠΑΣΧΟΝΤΩΝ ΑΠΟ ΜΕΣΟΓΕΙΑΚΗ ΑΝΑΙΜΙΑ (ΠΑΣΠΑΜΑ)
Patient / public education and awareness on disease: updating of website and organization of educational meetings for patients.EUR 17400 Pharma Πανελλήνια Ενωση Σπανίων Παθήσεων
Patient / public education and awareness on disease: educational meetings for rare diseases, World Day activities (Feb), advocacy activities with the strategic objective of developing Rare Diseases National plan with the collaboration of all relevant ministries, institutions.EUR 15000 Pharma Πανελλήνια Ομοσπονδία Ατόμων με Σκλήρυνση κατά Πλάκας
Patient / public education and awareness on disease: educational lectures during the annual general meeting, educational leaflets for newly diagnosed MS patientsEUR 6000 Pharma Πανελλήνια Ομοσπονδία Συλλόγων Εθελοντών Αιμοδοτών
Patient / public education and awareness on disease: support the national marathon to promote blood donationEUR 2000 Pharma Πανελλήνια Ομοσπονδία Σωματείων-Συλλόγων Ατόμων με Σακχαρώδη Διαβήτη, Π.Ο.Σ.Σ.Α.Σ.ΔΙΑ»
Services provided by a third party: communication in 4 issues of journal entitled " Glykia Zoi", support of November event "Diabetic Village"EUR 11944 Pharma Πανελλήνιος Σύλλογος Γυναικών με Καρκίνο Μαστού "Άλμα Ζωής"
Patient / public education and awareness on disease: educational leaflets for patients and general public on metastatic breast cancer: Support for Greece Race for the Cure.EUR 18000 Pharma Πανελλήνιος Σύλλογος Γυναικών με Καρκίνο Μαστού "Άλμα Ζωής"
Services provided by a third party: travel to European Breast Cancer CongressEUR 346 Pharma Πανελλήνιος Σύλλογος Μεταμοσχευθέντων εκ Νεφρού
Patient / public education and awareness on disease: events during National day for organ donation & transplantation, November 1stEUR 3000 Pharma Πανθεσσαλική Ενωση Ατόμων με Σκλήρυνση Πλάκας
Patient assistance: psychology support to Multiple Sclerosis (MS) patients, newly MS diagnosed patients and caregivers.EUR 3000 Pharma Σύλλογoς Mεταμόσχευσης Καρδιάς και Φίλων των Μεταμοσχεύσεων ΄΄Συνεχίζω΄΄
Patient assistance: support insurance program "Ethniki Asfalistiki" covering the hospitalization cost of re transplantation.EUR 3000 Pharma Σύλλογος Ατόμων με Σακχαρώδη Διαβήτη, Πειραιά και Νήσων
Services provided by a third party: free diagnostics tests (blood pressure, Hb A1c and fundoscopy) provided in 3 diabetology centersEUR 10512 Pharma Σύλλογος Γυναικών με Καρκίνο Μαστού "Άλμα Ζωής" Ν. Θεσσαλονίκης
Patient / public education and awareness on disease: patient educational seminar series, which offers psychological and practical support to women after surgeryEUR 8000 Pharma Σύλλογος Γυναικών με Καρκίνο Μαστού "Άλμα Ζωής" Ν. Θεσσαλονίκης
Services provided by a third party: travel to European Breast Cancer CongressEUR 493 Pharma Σύλλογος Γυναικών με Καρκίνο του Μαστού "Άλμα Ζωής", Ν. Αχαΐας
Patient / public education and awareness on disease: patient educational seminar seriesEUR 5000 Pharma Σύλλογος Γυναικών με Καρκίνο του Μαστού "Άλμα Ζωής", Ν. Αχαΐας
Services provided by a third party: travel to European Breast Cancer CongressEUR 369 Pharma Σύλλογος Διαβητικών Ν. Θεσσαλονίκης « Αγιος Δημήτριος
Patient / public education and awareness on disease: educational event in May on ophthalmic complications due to diabetes, educational event in Thessaloniki in NovemberEUR 3000 Pharma Σύλλογος Καρκινοπαθών "ΚΕΦΙ" Αθηνών
Services provided by a third party: advocacy campaign on cancer patient rightsEUR 20000 Pharma Σύλλογος Καρκινοπαθών "ΚΕΦΙ" Αθηνών
Patient / public education and awareness on disease: educational seminars for patients and public, psychological support groups for patientsEUR 3000 Pharma Σύλλογος Μεσογειακής Αναιμίας Χανίων - Ρεθύμνης «Άγιοι Ανάργυροι»
Patient / public education and awareness on disease: regional symposium for patients and awareness activities to increase blood donation.EUR 8000 Pharma Σύλλογος Πασχόντων από Μεσογειακή Αναιμία Ν. Λάρισας
Patient / public education and awareness on disease: symposium for patients and their familiesEUR 8000 Pharma Σύλλογος Προλήψεως και Βοηθείας Πασχόντων από Μεσογειακή Αναιμία "Πάτρα 1982"
Patient / public education and awareness on disease: regional symposium for patients and General AssemblyEUR 15000 Pharma Σύνδεσμος Ασθενών Νόσου Πάρκινσον
Patient / public education and awareness on disease: educational material (website, e-newsletter), World Day event in April, psychological support of membersEUR 2500 Pharma ΣΩΜΑΤΕΙΟ ΦΙΛΟΙ ΚΟΙΝΩΝΙΚΗΣ ΠΑΙΔΙΑΤΡΙΚΗΣ ΚΑΙ ΙΑΤΡΙΚΗΣ «ΑΝΟΙΧΤΗ ΑΓΚΑΛΙΑ»
Patient assistance: "clown doctor" program for the psychological support of hospitalized childrenEUR 10000 Pharma ΣΩΜΑΤΕΙΟ ΦΙΛΟΙ ΚΟΙΝΩΝΙΚΗΣ ΠΑΙΔΙΑΤΡΙΚΗΣ ΚΑΙ ΙΑΤΡΙΚΗΣ «ΑΝΟΙΧΤΗ ΑΓΚΑΛΙΑ»
General support of activities: support running costs of stem cell bank of hematology clinic in ThessalonikiEUR 90000 Pharma Συλλόγος Ατόμων με Σκλήρυνση κατά Πλάκας
Services provided by a third party: events during World Day (booth construction) & publication of issue No 22 of journal " Epikoinonoume"EUR 4350 Pharma Συλλόγος Ατόμων με Σκλήρυνση κατά Πλάκας
Patient / public education and awareness on disease: advocacy program for social benefits of MS patients & educational meeting about disease management and patients rightsEUR 20000 Pharma Συλλόγος Ατόμων με Χρόνιες Αλλεργικές Παθήσεις, η Ευαισθησία
Patient / public education and awareness on disease: educational event in Thessaloniki in March,EUR 1100 Pharma Συλλόγος Γονέων Παιδιών και Πασχόντων από Μεσογειακή Αναιμία Θεσσαλονίκης
Patient / public education and awareness on disease: several educational activities, blood donation program, participation in patient assistance program and working groups for psychological support.EUR 15000 Pharma Συλλόγος Παρκινσονικών Ασθενών και Φίλων Βορείου Ελλάδος
Patient / public education and awareness on disease: patient diaryEUR 2000 Pharma Συλλογος Ατόμων με Σκλήρυνση κατά Πλάκας Εορδαίας
Patient / public education and awareness on disease: educational event in NovemberEUR 1000 Pharma Φίλοι των Παιδιών με Χρόνιες Ρευματοπάθειες
Patient assistance: summer camp for children with rheumatoid diseases, educational printed material, public awareness communicationEUR 5000 Pharma πανελλήνια ενωση αμφιβληστροειδοπαθών
Patient / public education and awareness on disease: program entitled "IRIS, patient transportation program to ophthalmology clinics – dpts"EUR 56000 Pharma - Hungary
Patient Group Name and purpose of support Amount LC Division Delta Parkinson Egyesület
Patient / public education and awareness on diseaseHUF 2000000 Pharma Ébredések Alapítvány
Patient / public education and awareness on disease: patient careHUF 200000 Pharma Feledékeny emberek (Alzheimer betegek) hozzátartozóinak Társasága
Patient / public education and awareness on diseaseHUF 2000000 Pharma Magyar Rákellenes Liga
Patient / public education and awareness on disease: National Cancer DayHUF 1000000 Pharma Magyar SM Betegekért Alapítvány
Patient / public education and awareness on disease: National and World MS DaysHUF 5300000 Pharma Magyar SM Betegekért Alapítvány
General support of activities: volunteer programHUF 500000 Pharma Magyar Szervátültetettek Országos Sport, Kulturális és Érdekvédelmi Szövetsége
Patient / public education and awareness on disease: transplanted people's physical and mental rehabilitation, social life.HUF 650000 Pharma Parkinson Betegek Egyesülete
Patient / public education and awareness on diseaseHUF 200000 Pharma Sclerosis Multiplexes Betegek Országos Egyesülete
Patient / public education and awareness on disease: support organization of Abylimpics.HUF 350000 Pharma Transzplantációs Alapítvány a Megújított Életekért
Patient / public education and awareness on disease: education of transplanted people and advance their follow-up care.HUF 1850000 Pharma Trappancs Szervátültetett Gyermekek Rehabilitációs és Sportegyesülete
Patient assistance: rehabilitation program for transplanted childrenHUF 500000 Pharma - Ireland
Patient Group Name and purpose of support Amount LC Division Croí Heart & Stroke Charity
General support incl. advocacy, membership, etc.EUR 2500 Pharma / GenMed Asthma Society of Ireland
Patient / public education and awareness on diseaseEUR 10000 Pharma Cancer Care West
Patient assistance: fundraising for ConnemarathonEUR 6000 Pharma CML patient group
Congress attendance (registration, travel, accommodation, etc.) participation in CML Horizons MeetingEUR 3237.82 Pharma Diabetes Federation of Ireland
General support of educational activities: membershipEUR 10000 Pharma Fighting Blindness
General support of activities: 2012 Retina ConferenceEUR 15000 Pharma Haematology Association of Ireland
Research educational grantEUR 1500 Pharma Irish Cancer Society (ICS)
General support of activitiesEUR 8500 Pharma Irish Patients Association
Patient / public education and awareness on disease: stakeholder event on off-label medicines and patient rightsEUR 22625 Group Irish Platform for Patients' Organisations, Science and Industry (IPPOSI)
General support of activities: membershipEUR 15000 Pharma Meningitis Research Foundation Ireland
Patient / public education and awareness on disease: Patient experience videos, Meningitis Awareness Week 2012, Student Awareness Program, Parliamentary Round table, and Support services and disability rights & benefits.EUR 30000 V&D Multiple Sclerosis Society of ireland
General support of activities for World MS DayEUR 15000 Pharma NAI (The Neurological Alliance of Ireland)
General support of activities including "Brain Week" in IrelandEUR 20000 Pharma NCBI (National Council for the Blind of Ireland)
General support of activities: educational brochure & sponsorship of the NCBI Bloom festivalEUR 11000 Pharma Ross Nugent Foundation
General support of activitiesEUR 250 Pharma The Cystic Fibrosis Association of Ireland
Patient / public education and awareness on diseaseEUR 21700 Pharma The Cystic Fibrosis Registry of Ireland (CFRI)
Patient / public education and awareness on diseaseEUR 5000 Pharma The Marie Keating Foundation
Patient / public education and awareness on diseaseEUR 5000 Pharma - Italy
Patient Group Name and purpose of support Amount LC Division ABEO (Associazione Bambino Emopatico Oncologico) Onlus
Patient / public education and awareness on disease: Information campaign through leaflets and conferences to sensitize public opinion on all issues linked to haemoglobinopathiesEUR 5000 Pharma ADICO Associazione Diabetici di Copparo
Services provided by a third party: 2-day workshop educational programEUR 1166 Pharma Agencia Internazionale per la prevenzione della cecità - Sez. Italiana - IAPB
Services provided by a third party: 2-day workshop educational programEUR 1166 Pharma AI Alzheimer Italia
Services provided by a third party: 2-day workshop educational programEUR 1166 Pharma AIDO - Sezione Nazionale - Sezione Provinciale di Verona
Patient / public education and awareness on disease: support event "Giving in Music and Words 3"EUR 10000 Pharma AIL Associazione Italiana contro le Leucemie Linfomi e Mieloma - Venezia
Patient assistance: maintenance of residence apartments for patients suffering from leukemia in VeneziaEUR 10000 Pharma AIL ONLUS - sez. di Genova
Patient assistance: support for the purchase of furniture and appliances for "AIL HOME" apartments for patients undergoing bone marrow transplantationEUR 22000 Pharma AIL RAGUSA ONLUS
Patient assistance: campaign for the recruitment of bone marrow donorsEUR 12000 Pharma AIL (Associazione contro le Leucemie, Linfomi e Mieloma) sez. di Firenze onlus
Patient assistance: Home assistance for patients suffering from leukemia in FirenzeEUR 15000 Pharma AIMA Associazione Italiana Malattia di Alzheimer
Services provided by a third party: 2-day workshop educational programEUR 1166 Pharma AIP Associazione Italiana Parkinsoniani
Services provided by a third party: 2-day workshop educational programEUR 1166 Pharma AIPLMC ASSOCIAZIONE ITALIANA PAZIENTI LMC
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma ALCLI Giorgio e Silvia Associazione
Patient assistance: support children suffering from blood disordersEUR 5000 Pharma Associazione Alzheimer "Francesco Mazzuca" Onlus
Patient assistance: campaign to improve cognitive, physiological and pathological conditions of aging populationEUR 5000 Pharma Associazione Amici Centro Sclerosi Multipla - Ist. Scientifico San Raffaele - Milano
Patient / public education and awareness on disease: program of cognitive rehabilitation for patientsEUR 25000 Pharma Associazione Amici del Trapianto di Fegato Regione Lazio - Onlus
Patient assistance: support hospitality house for patients undergoing transplantation and their familiesEUR 5000 Pharma Associazione Amici dell'Ematologia GR.A.D.E. ONLUS
Patient assistance: Home assistance for patients suffering from hematological diseasesEUR 5000 Pharma Associazione Bambino Emopatico ONLUS, Caltanisetta
Patient / public education and awareness on disease: leaflets informing about blood disorders with focus on thalassemiaEUR 5000 Pharma Associazione Bambino Thalassemico, Taranto
Patient assistance: home and psychological assistance for patients suffering from thalassemiaEUR 25000 Pharma Associazione Cardio Trapiantati Italiani - ACTI - Sezione Siena
Patient assistance: support hospitality house for patients undergoing transplantation and their familiesEUR 10000 Pharma Associazione Catanzanese per gli studi Auxologici e per gli studi delle talassemie e delle emoglobinopatie
Patient / public education and awareness on disease: Educational Events organization for childrenEUR 15000 Pharma Associazione di Educazione, prevenzione e ricerca sull'Epatite C - EpaC - Onlus
Services provided by a third party: 2-day workshop educational programEUR 1166 Pharma ASSOCIAZIONE DI ONCOEMATOLOGIA MARIANGELA PINNA O.N.L.U.S.
Patient / public education and awareness on disease: educational eventsEUR 5000 Pharma Associazione don Giulio Farina ONLUS
Patient / public education and awareness on disease: five events for the prevention of breast cancerEUR 8000 Pharma ASSOCIAZIONE FRANCO E PIERA CUTINO - ONLUS, ALCAMO
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma ASSOCIAZIONE FRANCO E PIERA CUTINO - ONLUS, ALCAMO
Research Grant for 8 research centersEUR 150000 Pharma ASSOCIAZIONE FRANCO E PIERA CUTINO - ONLUS, ALCAMO
General support of activitiesEUR 150000 Pharma Associazione Giovanile Thalassemici della Provincia di Lecce Onlus
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma ASSOCIAZIONE HOSPITALE - SANTA FRANCESCA CABRINI
Patient / public education and awareness on disease : book for patients of SACCO HOSPITAL suffering from cancerEUR 5000 Pharma Associazione Italiana Contro l'Epilessia - AICE
Services provided by a third party: 2-day workshop educational programEUR 1166 Pharma Associazione Italiana contro le Leucemie e Linfomi
Patient / public education and awareness on disease: internet site supportEUR 70000 Pharma Associazione Italiana contro le Leucemie e Linfomi (A.I.L.) - Sezione di Ferrara
Patient assistance: Home assistance for patients suffering from leukemia lymphoma myeloma and other blood diseasesEUR 8000 Pharma Associazione Italiana contro le Leucemie e Linfomi (A.I.L.) - Sezione di ROVIGO
Patient assistance: support for the purchase of an ultrasound scanner for children with leukemia and other blood malignancies -Children hospital of AdriaEUR 5000 Pharma Associazione Italiana Diabetici - FAND
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Associazione Italiana Febbri Periodiche - AIFP
Services provided by a third party: 2-day workshop educational programEUR 1166 Pharma Associazione Italiana Febbri Periodiche - AIFP
General support of activitiesEUR 7000 Pharma Associazione Italiana Malati di Alzheimer - A.I.M.A. Onlus
Patient assistance: Project "Support team home"EUR 10000 Pharma Associazione Italiana PARKINSONIANI - Onlus
Patient assistance: Service SOS Parkinson - PublicationsEUR 25000 Pharma Associazione Italiana Pazienti Leucemia Mieloide Cronica
Consultancy and speaker services for European investigator meeting (July) and CML Advocates Advisory Board Meeting (November)EUR 2560 Pharma Associazione Italiana per la difesa degli interessi dei diabetici - A..I.D.
Patient / public education and awareness on disease: nutritional program for diabeticsEUR 5000 Pharma Associazione Italiana Rene Policistico Onlus - AIRP
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Associazione Italiana Sclerosi Multipla - A.I.S.M. - Sede Nazionale
Patient / public education and awareness on disease: educational event for young multiple sclerosis patients.EUR 25000 Pharma Associazione Italiana Sclerosi Multipla - A.I.S.M. - Milano
Patient / public education and awareness on disease: CP Day 2012 and Jong MS educationEUR 5000 Pharma Associazione Italiana Sclerosi Multipla - A.I.S.M. - Regione Sicilia
General support of activities: program for 'quality' of services improvement in the clinical center for MSEUR 15000 Pharma Associazione Italiana Trapiantati di Fegato - A.I.T.F. - ONLUS
Patient / public education and awareness on disease: campaign for organ donation and liver transplantation.EUR 7000 Pharma Associazione Ligure Thalassemici
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Associazione Lombarda Malati Reumatici - Milano - ALOMAR
Patient assistance: promotion of welfare/ education to patients with rheumatic diseases and their families.EUR 10000 Pharma Associazione Malattie del Sangue A.M.S. ONLUS Ospedale Niguarda Milano
Patient assistance: fertility seminars for patients with leukemiaEUR 10000 Pharma ASSOCIAZIONE Malattie rare Eritroci (A.M.A.R.E )
Patient / public education and awareness on disease: campaign targeted on Secondary school students focused on ThalassemiaEUR 5000 Pharma Associazione Microcitemici di Capitanata
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Associazione Mielofibrosi Giangattista Mazzini, Roma
Consultancy, speaker services at Myelofibrosis Advocates Advisory Board Meeting Milano January 2012EUR 783 Pharma Associazione Nazionale Donne Operate al Seno - A.N.D.O.S. O.N.L.U.S - Pordenone.
Patient assistance: program to help restart working activities for breast cancer patientsEUR 8000 Pharma Associazione Nazionale EmoDializzati - ANED
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Associazione Nazionale Italiana Patologie Ipofisarie A.N.I.P.I.
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Associazione Nazionale Italiana Patologie Ipofisarie A.N.I.P.I.
Congress attendance (registration, travel, accommodation, etc.): attendance to the first 2012 European Round Table discussion meetingEUR 150 Pharma Associazione Nazionale Italiana Patologie Ipofisarie A.N.I.P.I.
Services provided by a third party: support of meeting In Bergamo JuneEUR 1075 Pharma Associazione Nazionale Italiana Patologie Ipofisarie A.N.I.P.I.
Patient / public education and awareness on disease: website supportEUR 6000 Pharma Associazione Nazionale Malati Reumatici Onlus - ANMaR
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Associazione Oncologica Maceratese
Patient assistance: realization of a dedicated area for patients suffering from cancer and their relatives at Macerata HospitalEUR 10000 Pharma Associazione Parkinson Insubria ASPI - Onlus
Patient assistance: Call Center supportEUR 5000 Pharma Associazione Pavese Parkinsoniani Onlus
Patient assistance: Call Center supportEUR 5000 Pharma Associazione Pazienti Oncologici - A.P.E. (Associazione Pazienti Ematologici) Onlus Roma
Patient assistance: Home assistance for terminally-ill patients with blood cancerEUR 23000 Pharma Associazione per la lotta alla talassemia di Ferrara
Patient assistance program for Thalassemia affected patientsEUR 11000 Pharma Associazione per la Lotta contro la Talassemia - Ferrara
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma ASSOCIAZIONE PROGETTO UMAN.A C/O A.O. FATEBENEFRATELLI
Patient / public education and awareness on disease: realization of a book for cancer patients of the Fatebenefratelili HospitalEUR 5000 Pharma Associazione Provinciale per il Bambino Thalassemico
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Associazione Regionale Leucemia Infanzia Tumori ARLIT
Patient assistance: support project "E se Domani.."EUR 5000 Pharma Associazione salentina 'Angela Serra' Onlus - Parabita
Patient assistance: improvement of the diagnostic and psychological assistance for patients with Onco-Hematological diseasesEUR 8000 Pharma Associazione SCHIRINZI MARIO ONLUS
Patient / public education and awareness on disease: Seminars on therapeutic updates for patients suffering from Multiple MyelomaEUR 5000 Pharma Associazione Sclerosi Tuberosa Roma
Services provided by a third party: 2-day workshop educational programEUR 1166 Pharma Associazione Sclerosi Tuberosa Roma
Patient / public education and awareness on disease: Support to educational project "GO AHEAD 2012" for patients with tuberous sclerosis and their relativesEUR 20000 Pharma Associazione Siciliana per la Lotta contro le Leucemie e Tumori dell'Infanzia - A.S.L.T.I. - Onlus
Patient assistance: project "adopt a room" to make hospital rooms more comfortableEUR 5000 Pharma Associazione Talassemici e Drepanocitici Lombardi ONLUS, Milano
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Associazione Thalassemia Ospedale Garibaldi - Onlus
Patient / public education and awareness on disease: patients' magazine and local eventsEUR 12000 Pharma Associazione Thalassemici Ospedale dei Bambini Onlus- Palermo
Patient assistance: campaign for the integration of thalassemia affected patients in working placesEUR 10000 Pharma ASSOCIAZIONE TOSCANA RICERCHE E CURE ONCOLOGICHE
Patient assistance: home assistance for cancer patientsEUR 5000 Pharma Associazione Umbria Studio Leucemie e Linfomi - A.U.L.L.
Patient assistance: Medical assistance Santa Maria di Terni HospitalEUR 10000 Pharma Associazione Vittorio Tison Cultura e Solidarietà ONLUS
Services provided by a third party: organization of the International congress "Infection and cancer"EUR 10000 Pharma A.I.G. Associazione Italiana Gist - Milano
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma A.I.G. Associazione Italiana Gist - Milano
Services provided by a third party: fifth patient event in FebEUR 3207 Pharma A.I.G. Associazione Italiana Gist - Milano
Patient / public education and awareness on disease: web conferences and national meetings of Sarcoma -SPAEN patientsEUR 15000 Pharma A.I.L.- ASSOCIAZIONE ITALIANA CONTRO LE LEUCEMIE-LINFOM - MODENA
Patient assistance: Home assistance for patients suffering from leukemia lymphoma myeloma and other blood malignanciesEUR 18000 Pharma A.I.L.- ASSOCIAZIONE ITALIANA CONTRO LE LEUCEMIE-LINFOM - ONLUS COSENZA
Patient assistance: support project "Pronto Oncologia" and home assistance programEUR 15000 Pharma A.I.L.- ASSOCIAZIONE ITALIANA CONTRO LE LEUCEMIE-LINFOM - ONLUS PRATO
Patient assistance: Home assistance for patients suffering from leukemia and other blood cancer in PratoEUR 5000 Pharma A.I.L.- ASSOCIAZIONE ITALIANA CONTRO LE LEUCEMIE-LINFOMI
Services provided by a third party: Media support for the national educational event in JuneEUR 24917 Pharma A.I.L.- ASSOCIAZIONE ITALIANA CONTRO LE LEUCEMIE-LINFOMI E MIELOMA
General support of activities: organization of local seminars, solidarity project, webinar LMCEUR 47182 Pharma A.I.L. - ASSOCIAZIONE ITALIANA CONTRO LE LEUCEMIE-LINFOMI SEZIONE ANCONA ONLUS
Patient assistance: Leukemia project, assistance programs in NovaraEUR 15000 Pharma A.I.L. - ASSOCIAZIONE ITALIANA CONTRO LE LEUCEMIE-LINFOMI SEZIONE NOVARA ONLUS UDA EMATOLOGIA DIP.SCIENZE MEDICHE
Patient assistance: Leukemia project, assistance programs in NovaraEUR 17000 Pharma A.I.L. - ASSOCIAZIONE ITALIANA CONTRO LE LEUCEMIE-LINFOMI . ONLUS - sezione Provinciale di CASERTA
Patient assistance: programs in CasertaEUR 5000 Pharma A.I.L. - ONLUS SEZIONE PROVINCIALE DI RAVENNA
Patient assistance: programs in RavennaEUR 5000 Pharma A.I.L. - ONLUS SEZ. CATANIA
Patient assistance: Home program for patients suffering from Leukemia Lymphoma Myeloma in CataniaEUR 45000 Pharma A.I.L. Associazione contro le Leucemie, Linfomi e Mieloma onlus - sez. di Bolzano
Patient assistance: Home program for patients suffering from Leukemia Lymphoma Myeloma in BolzanoEUR 5000 Pharma A.I.L. VARESE ONLUS
Patient assistance: home program and Psychosocial support for patients suffering from blood malignanciesEUR 17500 Pharma A.I.L. sez. Alberto Neri - Reggio Calabria onlus
Patient assistance: Home program for patients suffering from leukemia in Reggio CalabriaEUR 5000 Pharma A..I.L. onlus - sez. di PESARO (Ass. Italiana contro le leucemie Linfomi e Mieloma)
Patient / public education and awareness on disease: educational campaign in PesaroEUR 6000 Pharma A..I.L. onlus - sez. di PISA Ass. Italiana contro le leucemie Linfomi e Mieloma
Patient assistance: maintenance of six apartments for patients suffering from leukemia and their relativesEUR 20000 Pharma Bianco Airone Pazienti Onlus
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Bianco Airone Pazienti Onlus
Patient assistance: consulting services and support for thalassemia patients in Eugenio HospitalEUR 7000 Pharma BroncoPneumopatia Cronica Ostruttiva - BCPO
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma CALCIT COMITATO AUTONOMO PER LA LOT CONTRO I TUMORI
Patient / public education and awareness on disease: creation of website, magazines for information on cancer diseasesEUR 12000 Pharma Comitato Assistenza Sociosanitaria in Oncoematologia Pediatrica C.A.S.O.P. ONLUS
Patient assistance: Home assistance for children with drepanocytosis and blood cancer - Assistance for Bone Marrow TransplantationEUR 8000 Pharma COMITATO MARIA LETIZIA VERGA ONLUS
General support of activities: purchase of ecodoppler devices, diffusion of educational leafletsEUR 10000 Pharma Comitato Nazionale contro la Meningite
Patient / public education and awareness on disease: CD during Community Partnership DayUSD 700 V&D Comitato Nazionale contro la Meningite
Services provided by a third party: organization of annual assembly, printing of posters, website, etc.EUR 100000 V&D Diabete Italia
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Diabete Italia
Services provided by a third party: organization of national conferenceEUR 25000 Pharma FederAsma - Federazione Italiana delle Associazioni di Sostegno ai Malati Asmatici e Allergici Onlus
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Federazione Diabete Emilia Romagna
Services provided by a third party: 2-day workshop educational programEUR 1166 Pharma Federazione Italiana delle Associazioni di Volontariato in Oncologia F.A.V.O.
Services provided by a third party: support of cancer patients and their familiesEUR 14500 Pharma FIDAS ONLUS (Associazione Donatori Volontari di Sangue)
Patient / public education and awareness on disease information campaign focused on thalassemiaEUR 10000 Pharma FONDAZIONE M. VITTORIA E A. SOLARI
Research grants: health outcome Psycho-oncology project to study the "daily life" of patients suffering from cancerEUR 5000 Pharma Fondazione Barbara Fanny Facchera ONLUS, Pavia
Patient assistance: support transport of Hematopoietic stem cells for patients affected by myelodysplastic syndromeEUR 13000 Pharma FONDAZIONE ITALIANA L. GIAMBRONE ONLUS ROMA
Patient assistance: web system for the remote monitoring of patients - planning of activitiesEUR 10000 Pharma FONDAZIONE ITALIANA L. GIAMBRONE ONLUS ROMA
Research grants: project HTA-Thal "Thalassemia Interregional Net: HTA of Therapeutical and Diagnostic-Instrumental Paths and Monitoring of Iron Overload"EUR 35000 Pharma Fondazione Salus Pueri - Onlus - Padova
Patient / public education and awareness on disease: 2 day event dedicated to the families of transplanted childrenEUR 13000 Pharma GAPLMC - Gruppo Ail Pazienti Leucemia Mieloide Cronica
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Gruppo Ricerca e Studio per le Emoglobinopatie - GRiSE
Services provided by a third party: 2-day workshop educational programEUR 1166 Pharma INSIEME PER REALIZZARE INIZIATIVE D SOLIDARIETA' - ONLUS
Patient assistance: home program in FrosinoneEUR 5000 Pharma Istituto Piemontese Ricerca Anemia di Blackfan-Diamond - DBA
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Lega del Filo D'oro
General support of activitiesEUR 3000 Pharma Lega Italiana Fibrosi Cistica Onlus - LIFC
Services provided by a third party: 2-day workshop educational programEUR 1166 Pharma Lega Italiana Fibrosi Cistica Onlus - LIFC
General support of activities: patients' programsEUR 10000 Pharma Lega Italiana per la lotta contro i Tumori - Lido di Camaiore, Lucca
Patient / public education and awareness on disease: project "The use of images for educational purposes in the relationship with patients suffering from cancer diseases"EUR 8000 Pharma Lega Italiana per la lotta contro i Tumori - Sezione Provinciale di Lecce
Patient assistance: home program for cancer patientsEUR 5000 Pharma Lega Italiana per la lotta contro i Tumori - Sezione Provinciale di Modena
Patient assistance: project Casa Luce e Sorriso Giovanni Paolo II for the assistance to cancer patientsEUR 5000 Pharma Lega Italiana per la lotta contro i Tumori - Sezione Provinciale di Napoli
Patient assistance: creation of a dedicated area for the children of cancer patients at LILT NaplesEUR 20000 Pharma Lega Italiana per la lotta contro i Tumori - Sezione Provinciale di Oristano
Patient / public education and awareness on disease: educational meetings and medical check up for the prevention of skin melanomaEUR 5000 Pharma Lega Italiana per la lotta contro i Tumori - Sezione Provinciale di Pisa
Patient assistance: project "Anxiety and quality of life for patients suffering from cancer diseases in radiotherapy"EUR 5000 Pharma NET ITALY ASSOCIAZIONE ITALIANA PAZIENTI CON TUMORI NEUROENDOCRINI
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma NET ITALY ASSOCIAZIONE ITALIANA PAZIENTI CON TUMORI NEUROENDOCRINI
Services provided by a third party: websiteEUR 18150 Pharma NET ITALY ASSOCIAZIONE ITALIANA PAZIENTI CON TUMORI NEUROENDOCRINI
Services provided by a third party for Net Cancer Day in NovemberEUR 10285 Pharma Parkinson Italia
General support activities: new websiteEUR 10000 Pharma Salute Donna - Associazione per la prevenzione e la lotta ai tumori femminili - Milano
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Salute Donna - Associazione per la prevenzione e la lotta ai tumori femminili - Milano
Patient assistance: support for a second waiting room for cancer patients and their relativesEUR 5000 Pharma Salute Donna - Associazione per la prevenzione e la lotta ai tumori femminili - Milano
Patient assistance: Sponsorship of Nordic Walking 20 lessonsEUR 12100 Pharma SUSAN G. KOMEN ITALIA
Patient / public education and awareness on disease: educational events for patients suffering from Metastatic Breast CancerEUR 5000 Pharma Unione Italiana Ciechi e Ipovedenti
General support of activitiesEUR 5000 Pharma UNIONE SALENTINA TALASSEMICI
Services provided by a third party: 2-day workshop educational programEUR 2332 Pharma Volontari per Policlinico Tor Vergata ONLUS, Roma
Patient assistance: home program for patients suffering from blood cancerEUR 23000 Pharma WE HELP YOU ONLUS
Patient assistance programs: concrete help for the management of the disease and support caregivers with care pathways relevant to patients.EUR 5000 Pharma - Latvia
Patient Group Name and purpose of support Amount LC Division Biedrība "BLASTŅŠ"
General support for improvement of health care quality and education.EUR 712 Pharma Kidney Patient Association
Congress attendance: participation in Transplant/kidney patient congressEUR 569 Pharma Kidney Patient Association
Patient / public education and awareness on disease: local educational conferenceEUR 427 Pharma Latvijas Multiplas Sklerozes Asociacija
General support of activitiesEUR 5080 Pharma Latvijas Multiplas Sklerozes Asociacija
Services provided by a third partyEUR 1765 Pharma Leikēmijas slimnieku atbalsta biedrība
General support of activities: educational material, communications, patient educational materialEUR 3842 Pharma Reto slimību biedrība Caladrius
General support of activities: Rare Disease Day organizationEUR 1423 Pharma - Lithuania
Patient Group Name and purpose of support Amount LC Division Amžinės geltonosios dėmės degeneracijos pacientų draugija
Patient / public education and awareness on disease: program emphasizing the importance of early treatment for AMDEUR 2027.34 Pharma Klaipėdos apskrities Išsėtine skleroze sergančiųjų ligonių draugija
Patient / public education and awareness on disease: seminar-school for MS sufferersEUR 232 Pharma Lietuvos cistines fibrozes asociacija
Patient / public education and awareness on disease: CF conferenceEUR 2027 Pharma Lietuvos cistines fibrozes asociacija
Services provided by a third party: communications on CF conferenceEUR 869 Pharma Lietuvos diabeto asociacija
Patient / public education and awareness on disease: educational conference for World Diabetes dayEUR 580 Pharma Lietuvos diabeto asociacija
General support of activities: support acquisition of computersEUR 580 Pharma Lietuvos Išsėtinės sklerozės sąjunga
Patient / public education and awareness on disease for 3 projects: development of regional MS societies, World MS day and Annual conference in Dec'12EUR 8110 Pharma Lietuvos Išsėtinės sklerozės sąjunga
Services provided by a third party: communication for annual conferenceEUR 1753 Pharma Lietuvos nefrologinių ligonių asociacija "Gyvastis"
Patient / public education and awareness on disease: increase awareness about donation and transplantation and internet program to support patients with kidney cancerEUR 6201.44 Pharma Lietuvos pacientu organizaciju atstovu taryba
Congress attendance: Attendance of a delegate to European patients Forum ConferenceEUR 290 Pharma Lietuvos pacientu organizaciju atstovu taryba
General support of activities: acquisition of 1 computerEUR 290 Pharma Onkohematologinių ligonių bendrija "Kraujas" (OHLB "Kraujas")
Patient / public education and awareness on disease: material and events about CML disease, treatment and diagnostic possibilities.EUR 6372 Pharma Onkologiniu ligoniu organizacija "Ismokime gyventi su vezio liga"
Patient / public education and awareness on disease: lectures for cancer patients in the Vilnius Oncology Institute.EUR 435 Pharma PAG Ausvis
Patient / public education and awareness on diseaseEUR 870 Pharma Retomis onkologinemis ligomis serganciu pacientu draugija "Roll'd"
Congress attendance: participation in International Patients conference for kidney cancer.EUR 435 Pharma Vilnius Region Bronchial Asthma Patients Club "Kvepuok laisvai",
Speaker services for lectures in 2012EUR 289.62 Pharma - Malta
Patient Group Name and purpose of support Amount LC Division Action for Breast Cancer Foundation Malta
Services provided by a third party: attendance to European Breast Cancer Conference, Vienna, March 2012EUR 1657 Pharma Breast Care Support Group - Europa Donna Malta
Services provided by a third party: organization of a post European Breast Cancer Conference seminar and support for venue of patient meeting during Breast Care Awareness monthEUR 3731.25 Pharma Breast Care Support Group - Europa Donna Malta
Services provided by a third party: travel and registration at SABCEUR 2500 Pharma Lumiere Support Group
General support of activities: annual meeting organizationEUR 1681.25 Pharma Malta Diabetes Association
General support of activities: annual fund raising eventEUR 650 Pharma Malta Hospice Movement
General support incl. advocacy, membership, etc.EUR 1200 Pharma Malta Osteoporosis Society
General support of activities: membership, venue for patient meetingEUR 550 Pharma Malta Osteoporosis Society
Services provided by a third party: event linked to World Osteoporosis DayEUR 75 Pharma Socjeta Azmatici Maltin
General support incl. advocacy, membership, etc.EUR 150 Pharma - Netherlands
Patient Group Name and purpose of support Amount LC Division Alzheimer Nederland
Patient / public education and awareness on disease: Alzheimer's panel surveyEUR 5000 Pharma Astma Fonds
Research grants: health outcome researchEUR 11720 Pharma Astma Fonds
General support of activities: trainingEUR 5000 Pharma Bijniervereniging NVACP
Consultancy services for the EU Pituitary round table meeting in Zurich 2012EUR 150 Pharma Borstkanker vereniging Nederland
Patient / public education and awareness on disease: magazineEUR 12500 Pharma Borstkanker vereniging Nederland
Congress attendance: Participation to EHBC CongressEUR 750 Pharma Diabetes vereniging Nederland
Patient / public education and awareness on diseaseEUR 25000 Pharma Hypofyse Stichting
Patient / public education and awareness on disease: brochuresEUR 5000 Pharma Kinderen met auto-immuun en auto-inflammatoire systeem ziekte
Research grant: feasibility studyEUR 10000 Pharma Longkanker informatiecentrum
Patient / public education and awareness on disease: Social mediaEUR 3500 Pharma MPN stichting
Consultancy services for Myelofibrosis Advocates Advisory Board Meeting Milano, January 2012 and In Amsterdam in June 2012EUR 6500 Pharma Nederlandse Cystic Fibrose Stichting
General support: support digital information centerEUR 3000 Pharma Nederlandse Federatie van Kankerpatiëntenorganisaties
Patient / public education and awareness on disease: Improvement of patient careEUR 10000 Pharma Nederlandse leverpatienten vereniging
General support of activities: magazine, website and information meetingEUR 2000 Pharma Nierpatienten Vereniging
General support of activitiesEUR 5000 Pharma OSCAR Nederland
Congress attendance: Jubilee symposiumEUR 3000 Pharma Osteoporose Stichting
Patient / public education and awareness on disease: developing scientific information via tweetEUR 3000 Pharma osteoporose vereniging
Patient / public education and awareness on disease: patient Day supportEUR 5000 Pharma Parkinson vereniging
Research grant for health outcome research: survey and documentation for care indicator processEUR 10000 Pharma Patientenvereniging Harten Twee
Patient / public education and awareness on disease: scientific meetingEUR 6000 Pharma Stichting Contactgroep Leukemie
Congress attendance to CML Advocates Advisory Board Meeting in Milan, Italy, November 2012 and New Horizon CongressEUR 4060 Pharma Stichting Contactgroep Leukemie
Patient / public education and awareness on disease: Update CML guidelinesEUR 3000 Pharma Stichting Contactgroep Prostaatkanker
Patient / public education and awareness on disease: DVDEUR 5000 Pharma Stichting Klankbord
Patient / public education and awareness on disease: dietary programEUR 3000 Pharma Stichting LAM
Patient / public education and awareness on disease: annual meetingEUR 1500 Pharma Stichting Net-Groep
Patient / public education and awareness on disease: NET brochureEUR 8000 Pharma Stichting Net-Groep
Services provided by a third party to attend Novartis advisory boardEUR 500 Pharma Stichting Tubereuze Sclerosis Nederland
Patient / public education and awareness on disease: update of brochureEUR 6000 Pharma Stichting voor patienten met kanker aan het spijsverteringskanaal
Patient / public education and awareness on disease: brochuresEUR 2600 Pharma Vereniging ouders kinderen en kanker
Patient / public education and awareness on disease: parent child perspectiveEUR 3000 Pharma Vereniging Waterloop
Patient / public education and awareness on diseaseEUR 4000 Pharma Wiplash Stichting Nederland
Patient / public education and awareness on disease: project "Pijnpatiënten naar één stem"EUR 5000 Pharma - Norway
Patient Group Name and purpose of support Amount LC Division Astma og Allegi forbundet
General support of activities: membershipNOK 27500 Pharma Brystkreftforeningen
Congress attendance n San Antonio for editorNOK 27000 Pharma Carcinor
Services provided by a third party for attendance at Novartis sponsored advisory boardEUR 500 Pharma Diabetesforbundet
Patient / public education and awareness on disease: Support of the World Diabetes DayNOK 20000 Pharma Landsforeningen for nyretransplanterte pasienter
General support of activities: membershipNOK 23000 Pharma Multippel Sklerose Forbundet
Patient / public education and awareness on diseaseNOK 119000 Pharma Norges Blindforbund
Patient / public education and awareness on diseaseNOK 120000 Pharma Norsk forening for cystisk fibrose
Patient / public education and awareness on disease: annual meeting and adolescent meetingNOK 60000 Pharma Psoriasisforbundet
General support of activities: membershipNOK 14000 Pharma Sarkomforeningen
Patient / public education and awareness on disease: website supportNOK 55000 Pharma - Poland
Patient Group Name and purpose of support Amount LC Division Federacja Stowarzyszeń AMAZONKI
Patient / public education and awareness on disease: printed material on breast cancer and training for patientsPLN 35000 Pharma Fundacja Aby Życ
Patient / public education and awareness on disease: organization of educational conferencePLN 10000 V&D Fundacja Godne Zycie
General support: support the purchase of medical equipment for patientsPLN 10875.68 Pharma Fundacja Dziecięca Fantazja
Patient / public education and awareness on diseasePLN 500 Pharma Fundacja na Rzecz Postępów w leczeniu cukrzycy i innych chorób metabolicznych 'Życ z cukrzycą'
Patient / public education and awareness on diseasePLN 2500 Pharma Fundacja Polska Koalicja Organizacji Pacjentów Onkologicznych
Patient / public education and awareness on disease: educational conference and communicationPLN 80000 Pharma Fundacja Pomocy Chorym na Białaczkę
General support: 3 grants for the purchase of medical equipmentPLN 48000 Pharma Fundacja Pomocy Chorym na Białaczkę
Consultancy services for CML Advocates Advisory Board Meeting, Milan, Italy, November 2012EUR 2060 Pharma Fundacja Towarzystwo Przyjaciół Centrum Zdrowia Dziecka
Congress attendance: trainingPLN 20000 Pharma Polska Federacja Stowarzyszeń Chorych na Astmę Alergię i POChP
Patient / public education and awareness on diseasePLN 50000 Pharma Polski Związek Niewidomych
Patient / public education and awareness on disease: organization of VIIth Retina WeekPLN 30000 Pharma Polskie Stowarzyszenie Ludzi Cierpiących Na Padaczkę
Patient / public education and awareness on disease: educational program 'zauważ mnie' and other programsPLN 7000 Pharma Polskie Towarzystwo Stwardnienia Rozsianego
Patient / public education and awareness on disease: patient advocacy programPLN 60000 Pharma Silesian Alzheimer's Patient Association
General support of activities: Extension of the rehabilitation building for patients with Alzheimer'sPLN 10000 Pharma Stowarzyszenia PBS
Patient / public education and awareness on disease: national educational lectures for patientsPLN 80000 Pharma Stowarzyszenie Chorych na Autoimmulogiczne Choroby rzadkie, choroby ultrarzadkie i osób wspierajacych
Congress attendancePLN 30000 Pharma Stowarzyszenie Chorych na Stwardnienie Guzowate
Patient / public education and awareness on disease: education meeting and conferencePLN 13000 Pharma Stowarzyszenie Chorych na Stwardnienie Guzowate
Congress attendancePLN 25000 Pharma Stowarzyszenie na Rzecz Rozwoju Dawstwa Szpiku
Congress attendancePLN 15000 Pharma Stowarzyszenie Pomocy Chorym na Nowotwory Krwi
Patient assistance: additional molecular diagnostics for patientsPLN 5000 Pharma Stowarzyszenie Retina AMD Polska
General support: support the purchase of medical equipment for patientsPLN 15000 Pharma Stowarzyszenie "Życie Po Przeszczepie"
Congress attendance: Retina International 2012PLN 24500 Pharma - Portugal
Patient Group Name and purpose of support Amount LC Division Alzheimer Portugal
Patient / public education and awareness on disease: to National Alzheimer Congress for families and physiciansEUR 2000 Pharma Ame e Viva a Vida - Associação de Mulheres Mastectomizadas
Patient / public education and awareness on disease: Support for breast cancer awareness monthEUR 188 Pharma Associação de Doentes com Leucemia e Linfoma
Patient / public education and awareness on disease: educational meetingEUR 6000 Pharma Associação de Esclerose Tuberosa em Portugal
General support of activities: 2nd meeting with families of TSC patients, 2nd TSC Congress, TSC Day activities and Naples MeetingEUR 11500 Pharma Associação de Pacientes de Mielofibrose de Portugal
Patient / public education and awareness on disease: communication materialEUR 332 Pharma Associação Nacional de Esclerose Múltipla
Patient / public education and awareness on disease: communication material, Support to activities in National a World MS DayEUR 8180.14 Pharma Associação Portuguesa Contra a Leucemia - APCL
Patient / public education and awareness on disease: CML Awareness Day ActivitiesEUR 22649 Pharma Associação Portuguesa de Asmáticos e Alérgicos
Research grant to a study about the impact and management of asthma in PortugalEUR 10000 Pharma Associação Portuguesa de Fibrose Quística
Patient / public education and awareness on disease: meeting at European CF Day for families, patients and physiciansEUR 2000 Pharma Associação Portuguesa de Fibrose Quística
Services provided by a third party: communicationEUR 5000 Pharma Associação Portuguesa de Pais e Doentes com Hemoglobinopatias
Patient / public education and awareness on disease: national educational meetings and materials (leaflets, website and newsletter)EUR 10400 Pharma Associação Portuguesa de Paramiloidose
Patient / public education and awareness on disease: support the annual newsletter of the associationEUR 2500 Pharma Associação Promotora do Ensino dos Cegos
General support of activities namely for the development of communication materialEUR 10000 Pharma Associação Protectora dos Diabéticos de Portugal
General support of activities: Together It's Easier Program; Maintenance of the Association Website; Membership FeesEUR 9000 Pharma Associação Todos com a Esclerose Múltipla
Patient / public education and awareness on diseaseEUR 2250 Pharma Association for Patients with Myellofibrosis in Portugal
Consultancy services for the Myelofibrosis Advocates Advisory Board Meeting in Amsterdam June 2012EUR 3000 Pharma Federação das Doenças Raras de Portugal - FEDRA
Patient / public education and awareness on disease: European Rare Diseases Day activitiesEUR 7500 Pharma Liga Portuguesa Contra o Cancro
Patient / public education and awareness on disease Support for a kidney cancer brochureEUR 406 Pharma Raríssimas - Associação Nacional de Doenças Mentais e Raras
Consultancy services at the EU Pituitary round table Zurich 2012EUR 150 Pharma Raríssimas - Associação Nacional de Doenças Mentais e Raras
Patient / public education and awareness on disease: Support for the creation of a help line and meeting for the 10th anniversary of the associationEUR 7000 Pharma RESPIRA - Associação Portuguesa de Pessoas com DPOC e Outras Doenças Respiratórias Crónicas
Patient / public education and awareness on disease: activities at World COPD DayEUR 2000 Pharma Sociedade Portuguesa de Esclerose Múltipla
Patient / public education and awareness on disease: educational activities and rehabilitation (physiotherapy) servicesEUR 12500 Pharma - Romania
Patient Group Name and purpose of support Amount LC Division Asociatia AntiParkinson din Romania
Patient / public education and awareness on disease: annual meeting, counseling and information programs (MS help Desk, info line, Patients Journal).RON 14665 Pharma Asociatia Bolnavilor de Cancer" din Romania ( A.B.C. )
General support of activities: project "School starts also for children with hematologic cancer" - in Brasov, Sept 2012RON 6861 Pharma Asociatia Oncologic Rom
Services provided by a third party for determining bone mineral density for breast cancer patients in four locationsRON 2640 Pharma Asociatia Pacientilor cu Tumori Neuroendocrine din Romania ( APTNR )
Congress attendance: participation of association's president to the Congress of the Romanian Endocrinology Society, Sept 2012, Sinaia, Romania,RON 433 Pharma Asociatia Pacientilor cu Tumori Neuroendocrine din Romania ( APTNR )
Patient assistance: medical diagnostic with scintigraphy 111 pantetreotide (octreoscan) for 30 patients.RON 94658 Pharma Asociatia Pacientilor cu Tumori Neuroendocrine din Romania ( APTNR )
General support of activities: Q1 and Q4RON 19969 Pharma Asociatia Pacientilor cu Tumori Neuroendocrine din Romania ( APTNR )
Patient / public education and awareness on disease: website updatingRON 4345 Pharma Asociatia Pacientilor cu Tumori Neuroendocrine din Romania ( APTNR )
Services provided by a third party: biological tests for patients with neuroendocrine tumors , acromegaly and thalassemia for the diagnosis and treatment.RON 462615 Pharma Asociatia PAVEL
Congress attendance: participation of two members at ICCCPO meeting and 44th Congress of SIOP in London, the 8th European Congress HOPE in Amsterdam and ECPC meeting in Bruxelles - Oct 2012RON 9200 Pharma Asociatia PAVEL
General support of activities related to Christmas 2012 for 200 children in hemato-oncology wards of hospitalsRON 6900 Pharma Asociatia PAVEL
General support of activities for event "World Children Winners Games", in Moscow, RussiaRON 19800 Pharma Asociatia PAVEL
General support of activities in Q1RON 6600 Pharma Asociatia Persoanelor cu Talasemie Majora din Romania- APTM
General support of activities: organization of International Thalassemia Day event and first edition of patients' magazine,RON 19800 Pharma Asociatia Persoanelor cu Talasemie Majora din Romania - APTM
General support of activities: organization of workshop at SRH Congress in Sinaia (Oct) and travel costs for attendance to the 3rd Pan European Conference on Haemoglobinopathies and Rare Anemias, Limasol, Cyprus, October 2012RON 29900 Pharma Asociatia Romana de Cancere Rare ( ARCrare )
Congress attendance: one member to the "Second Annual orphan Drug Congress", June 2012 in Barcelona, Spain; travel of association's president to Prague to attend the ICBA Workshop, October 2012 and to Oslo at the Franbu Center (center for rare diseases) and 2 members to the "CML Horizons 2012 - Patient Advocacy Conference", May 2012, Munich.RON 16348 Pharma Asociatia Romana de Cancere Rare ( ARCrare )
Patient / public education and awareness on disease: organization of International CML Awareness Day - Sept 2012 and supplement for "Awareness Cancer Rare" campaign.RON 30960 Pharma Asociatia Romana de Cancere Rare ( ARCrare )
General support of activities: organization of Event "Adriana exista" in NovRON 225855 Pharma Asociatia Romana de Cancere Rare ( ARCrare )
General support of activities: stakeholder event (Bucharest in June) to start common rare diseases projects; ECPC Master Class training and HTA trainingRON 27000 Pharma Asociatia Romana de Cancere Rare ( ARCrare )
General support of educational activities (Jan to April)RON 52200 Pharma Asociatia Romana de Cancere Rare ( ARCrare )
General support of educational activities: Fall Courses on rare Diseases for Medical Journalists, Sept 2012, in ZalauRON 23000 Pharma Asociatia Romana de Cancere Rare ( ARCrare )
General support of activities: July-SeptRON 27000 Pharma Asociatia Romana de Cancere Rare ( ARCrare )
General support of activities: December workshops for thalassemia patientsRON 15776 Pharma Asociatia Romana de Osteogeneza Imperfecta "Oameni Fragili".
General support of activities: websiteRON 4600 Pharma Asociatia Transplantatilor din Romania
General support of activities: participation of two patients at the European Transplant Sport Games and ETDSF Meeting, August 2012, Zagreb, production of calendarsRON 35888 Pharma Asociatia Transplantatilor din Romania
Patient / public education and awareness on disease: organization of the "Association's role in Transplant patients' life" conference and pro-donation campaign, June 2012; production of the Transplant patient journalRON 48127 Pharma COALITIA ORGANIZATIILOR PACIENTILOR CU AFECTIUNI CRONICE DIN ROMANIA ( C.O.P.A.C. )
General support of activities: organization of 3rd edition of National Forum of Patients Organization, Bucharest, MarchRON 13000 Pharma Federatia Asociatiilor Bolnavilor de Cancer
Patient / public education and awareness on disease: project "Cancer Survivor Day" - Dec 2012 in Brasov; campaign for breast cancer patients (July-September 2012).RON 18015 Pharma Federatia Asociatiilor Bolnavilor de Cancer
General support of activities: organization of the 4th edition of FABC National Conference, June in BrasovRON 11313 Pharma Little People Association
Patient / public education and awareness on disease: organization of the "9th Pan Care Conference", May in Bucharest, to discuss optimal long-term follow-up care for teenagersRON 13100 Pharma Little People Association
General support of activities: organization of 5th Summer Camp Temerarii" in Cluj county for 160 cancer survivors; organization of the "2012 Temerarii Christmas Gala" for teenagers surviving cancerRON 20261 Pharma MS Patients Association
General support of December activities, organization of annual meeting of MS Patients and counseling and information program (MS help Desk, info line, MS Patients Journal).RON 64278 Pharma MYELOMA EURONET ROMANIA
Patient / public education and awareness on disease: educational activities and patients' Conference, in Bucharest, SeptRON 9000 Pharma MYELOMA EURONET ROMANIA
General support of activities: website and brochure on multiple myeloma.RON 23320 Pharma - Russia
Patient Group Name and purpose of support Amount LC Division Автономная некоммерческая организация по оказанию помощи больным онкологическими и онко-гематологическими заболеваниями "Содействие"
Patient / public education and awareness on disease: patients schools', web site support, educational material for CML patients; organization in Russian and international CML patients congressesRUB 8377485 Pharma Всероссийская общественная организация нефрологических и трансплантированных больных "Право на жизнь"
Patient / public education and awareness on disease: support of school programs to discuss problems for patients with nephrology diseases; "Discussion of nephrology problems with doctors"; Briefing of "Nephrology problems" to media during the World Kidney Day.RUB 100000 Pharma Всероссийская общественная организация нефрологических и трансплантированных больных "Право на жизнь"
Patient / public education and awareness on disease: support of school program for patients "Discussion of nephrology problems with doctors"RUB 150000 Pharma Всероссийская общественная организация нефрологических и трансплантированных больных "Право на жизнь"
Patient / public education and awareness on disease: support of school programs to discuss problems for patients with nephrology diseasesRUB 200000 Pharma Межрегиональная общественная организация "Помощь больным муковисцидозом"
Patient / public education and awareness on disease: training association's representatives during 2nd Russian congress of CF patients, November, 2012.RUB 570000 Pharma Межрегиональная общественная организация нефрологических пациентов "НЕФРО-ЛИГА"
Patient / public education and awareness on disease: educational seminar for patients; organization of schools for patientsRUB 500000 Pharma Некоммерческая организация Учреждение "Центр реабилитации незрячих детей и их родителей "Я и МАМА"
Patient assistance: project "Mommy's school"RUB 1336000 Pharma Нижегородская региональная общественная организация помощи больным муковисцидозом
Patient / public education and awareness on disease: annual CF day in Nizhniy NogorodRUB 7000 Pharma Общероссийская общественная организация инвалидов "Российская деабетическая ассоциация"
Services provided by a third party: Logistics and accommodation of 15 regional members-participants of RDA conference in Moscow, May 2012.RUB 364416 Pharma Общероссийский благотворительный общественный фонд "Содружество"
Services provided by a third party: School for TSC patients and their familiesRUB 127018 Pharma Общероссийский благотворительный общественный фонд "Содружество"
General support of activities: web site creationRUB 1244500 Pharma - Serbia
Patient Group Name and purpose of support Amount LC Division Društvo za borbu protiv raka "Sombor"
Patient / public education and awareness on disease: organization of the two-day forum "Cancer in the net"EUR 810 Pharma Nacionalno udruženje roditelja dece obolele od raka "NURDOR"
Patient assistance: adaptation "parents' house" in NisEUR 420 Pharma Udruzenja gradjana "Zenski centar Uzice", Zdravstveni program Savetovaliste za zene obolele od raka dojke "Jefimija"
Patient / public education and awareness on disease: educational workshopsEUR 250 Pharma Udruzenja zena obolelih od raka "Budimo zajedno"
Patient / public education and awareness on disease: educational materialEUR 240 Pharma Udruzenje gradjana Alchajmer
Services provided by a third party: meetingRSD 60000 Pharma Udruzenje gradjana za pomoc u lecenju obolelima od hronicne mijeloidne leukemije, skraceno: CML udruzenje Srbija
Patient / public education and awareness on disease: Spring and Fall meetings of members and hematologists to discuss disease and treatment issues; organization of World CML Day in SeptRSD 252000 Pharma Udruzenje gradjana za pomoc u lecenju obolelima od hronicne mijeloidne leukemije, skraceno: CML udruzenje Srbija
Services provided by a third party: attendance of 2 members to New Horizons in treating Cancer ConferenceUSD 2255 Pharma Udruženje DonorHeroj
Patient / public education and awareness on disease: printed material for promoting cadaveric organ donations for transplant (posters, leaflets)RSD 40000 Pharma Udruženje transplantiranih Vojvodine "PanTransplant"
Patient / public education and awareness on disease: educational lecture for transplanted patientsRSD 100000 Pharma Udruženje transplantiranih Vojvodine "PanTransplant"
Services provided by a third party: Multifunctional device (printer, scanner, copier)RSD 17318 Pharma UPRT-Udruzenje pacijenata sa retkim tumorima
Patient / public education and awareness on disease: NET awareness DayEUR 1327 Pharma UPRT-Udruzenje pacijenata sa retkim tumorima
Services provided by a third party: educational activitiesEUR 855 Pharma - Slovakia
Patient Group Name and purpose of support Amount LC Division CML Life
Patient / public education and awareness on disease: educational material, support of 2nd Slovak meeting of CML patients, support to Head of CML Life to attend CML HorizonsEUR 10800 Pharma Liga proti rakovine
General support of activities: support of daffodil day - fundraisingEUR 15000 Pharma Nadácia Pontis
General support of educational activities in field of responsible businessEUR 50000 Pharma Neinvestičný fond 3 Z pre záchranu a zlepšenie zraku
General support: education in health care sectorEUR 17500 Pharma Občianské združenie Priamka
General support patient of educational activitiesEUR 15000 Pharma Občianske združenie VIZUS
General support patient of educational activitiesEUR 10950 Pharma Občianske združenie Zóna zdravia
General support patient of educational activitiesEUR 87689 Pharma Občianske združenie "Zdravé oči"
General support patient of educational activitiesEUR 10000 Pharma Osteovia, n.o.
General support patient of educational activitiesEUR 1000 Pharma - Slovenia
Patient Group Name and purpose of support Amount LC Division GISTNET - Društvo bolnikov z redkimi tumorji prebavil
Patient / public education and awareness on disease: campaign for raising awareness of rare tumors.EUR 8000 Pharma Društvo bolnikov s krvnimi boleznimi
Patient / public education and awareness on disease: disease awareness booklet preparation and publicationEUR 5600 Pharma Društvo Mena - humanitarna organizacija
Patient / public education and awareness on disease: meetings, workshopsEUR 400 Pharma Europa Donna Slovenia
Patient / public education and awareness on disease: awareness of available treatment options in breast cancerEUR 5000 Pharma Inkont - humanitarna organizacija
Patient / public education and awareness on disease: meetings, events, workshopsEUR 400 Pharma Slovensko združenje bolnikov z limfomom in levkemijo, L&L
Patient / public education and awareness on disease: publication of a disease awareness booklet, upgrade of website, attendance of representatives to a CML Horizons meeting)EUR 10000 Pharma Spomincica - Slovensko združenje za pomoč pri demenci
Patient / public education and awareness on disease: programs: "Ne pozabi me", brochures, lectures for caregiversEUR 3700 Pharma Trepetlika
Patient / public education and awareness on disease: program "Dobro izobražena družina"EUR 2000 Pharma Združenje MS Slovenije
Services provided by a third party: annual meetingEUR 2500 Pharma Zveza društev diabetikov Slovenije
Patient / public education and awareness on diseaseEUR 2000 Pharma - Spain
Patient Group Name and purpose of support Amount LC Division AIRG - Asociación de enfermerdades renales congenitas
Indirect support for annual meetingEUR 1200 Pharma ALAL - Asociación de Lupus de Almeria
Patient / public education and awareness on disease: annual meetingEUR 600 Pharma Asociación Canaria de Cáncer de Mama y Ginecológico (ACCMYG)
Congress attendance: IV International Capacity Building Alliance Workshop' in Prague, October 2012; 'X Jornadas Autonómicas sobre Cancer de Mama y Ginecológico' in Las Palmas de Gran Canaria, October 2012EUR 4179.99 Pharma Asociación Catalana de Lupus
Indirect support for creating awareness on disease and Quality of LifeEUR 300 Pharma Asociación de Enfermos de Riñón - ADER
Indirect support for association's eventsEUR 300 Pharma Asociación de Esclerosis Múltiple de Gipuzkoa
Patient / public education and awareness on disease: annual eventEUR 2500 Pharma Asociación de pacientes de Esclerosis Múltiple de Cartagena
Patient / public education and awareness on disease: annual meetingEUR 998.28 Pharma ASOCIACION DE TRASPLANTADOS DE CORAZON DE ANDALUCIA "CIUDAD HISPALIS"
Indirect support for material on awareness of cardiac failure and on Quality of LifeEUR 100 Pharma Asociación Española de Afectados por Acromegalia
Consultancy services for the EU Pituitary Round table in Zurich 2012EUR 150 Pharma Asociación Española de Afectados por Acromegalia
Patient / public education and awareness on disease: event' Acromegalia en Primera Persona. I Encuentro Nacional de Pacientes' in Madrid; annual meeting: '2º Encuentro de pacientes con Acromegalia. Estar mejor está en tus manos', in Barcelona, Nov 2012EUR 5500 Pharma Asociación española de afectados por linfomas, mielomas y leucemias (aeal)
Patient / public education and awareness on disease: project: 'What is chronic Myeloid Leukemia; event '6th European Conference of Rare Diseases & Orphan Products; project: 'Webinario'- On-line seminars for patients with lymphoma, myeloma, leukemia and other related blood diseases.EUR 79878.83 Pharma Asociación española de afectados por linfomas, mielomas y leucemias (aeal)
Consultancy services for Myelofibrosis Advocates debate in June 2012, AmsterdamEUR 1600 Pharma Asociación española de afectados por linfomas, mielomas y leucemias (aeal)
General support of activities for World CML dayEUR 12350 Pharma Asociación española de afectados por linfomas, mielomas y leucemias (aeal)
Patient assistance: Project E-Cancer Campus; project Conversations with the patient on May 16th; project for the guidance on social resourcesEUR 46200 Pharma Asociación Española de Hemocromatosis (AEH)
Patient / public education and awareness on disease: European day of hemocromatosis; meeting: 'Jornada del Día Europeo de la Hemocromatosis y Día Internacional de la Hemocromatosis' June, 2012.EUR 3000 Pharma Asociación Española de Lucha contra las Hemoglobinopatías y Talasemias (ALTHEA)
Patient / public education and awareness on disease: International Thalassemia Day, May 2012.EUR 2000 Pharma Asociación Nacional de Esclerosis Tuberosa
Patient / public education and awareness on disease: Web site for information to patients and relatives.EUR 5000 Pharma Asociación Nacional de Hipertensión Pulmonar
Patient / public education and awareness on disease: Pulmonary Hypertension SymposiumEUR 1203.2 Pharma Associació Catalana Sindrome X Fragil
Patient / public education and awareness on disease: Fragile X syndrome dayEUR 3000 Pharma Associació de Discapacitats Visuals de Catalunya
Patient / public education and awareness on disease: project: rehabilitación y acompañamientoEUR 12500 Pharma Associació de Trasplantats Hepàtics de Catalunya - ATHC-
Indirect support for annual meetingEUR 1100 Pharma Confederación Española de Asociaciones de Familiares de Personas con Alzheimer
Patient / public education and awareness on disease: training program for caregivers and patients;EUR 167000 Pharma Confederación Española de Asociaciones de Familiares de Personas con Alzheimer
Patient / public education and awareness on disease: project: 'Proyecto Memoria'EUR 90000 Pharma Federación de Asociaciones de Esclerosis Múltiple - FEDEMA-
Patient / public education and awareness on disease: course "I Curso de formación de Agentes de Salud"; annual event:' II Jornada científica e Informativa sobre EM'EUR 8000 Pharma Federación de Diabéticos Españoles (FEDE)
Patient / public education and awareness on disease: initiative "Retinopatías diabeticas"EUR 14500 Pharma Federación Española de Cancer de Mama (FECMA)
Congress attendance for 8th European Breast Cancer Conference, in Vienna, May 2012EUR 499.95 Pharma Federación Española de Fibrosis Quística
Patient / public education and awareness on disease: magazineEUR 1960 Pharma Federación Nacional de asociaciones para la lucha contra las enfermedades renales - ALCER
Patient / public education and awareness on disease and Quality of Life after transplantationEUR 18000 Pharma FELEM: Federación Española para la lucha contra la Esclerosis Múltiple
Patient assistance: M1 projectEUR 30000 Pharma Fundación Esclerosis Múltiple - FEM
Research grants for data entry service for two Investigator Initiated Trials promoted by Hospital Vall Hebron.EUR 65055 Pharma Fundación Esclerosis Múltiple - FEM
Patient / public education and awareness on disease: project for guidelines on MS; support activities 'Dia mundial EM', Mulla't, ball -taxiEUR 88800 Pharma Fundación Esclerosis Múltiple Eugenia Epalza
Patient / public education and awareness on disease: annual eventEUR 1440 Pharma Fundación Irene Megias contra la Meningitis
Services provided by a third party: e think tank meeting, diagnostic application, guide, bookletEUR 145846 V&D Grupo Español de Pacientes con Cáncer (GEPAC)
Congress attendance to CML Horizons 2012. Patient Advocacy conferenceEUR 801.26 Pharma Grupo Español de Pacientes con Cáncer (GEPAC)
Patient / public education and awareness on disease: brochure on neuroendocrine tumors; book and brochure on kidney cancerEUR 16867.7 Pharma Grupo Español de Pacientes con Cáncer (GEPAC)
General support of activities: communication and social networks on websiteEUR 20000 Pharma Grupo Español de Pacientes con Cáncer (GEPAC)
Patient assistance: Campaign "Toca Hablar 2.0". Inform and generate debate on the disease through social networksEUR 86257.74 Pharma Grupo Español de Pacientes con Cáncer (GEPAC)
Patient / public education and awareness on disease: new website about kidney cancer; website of APTURE - Association of Patients with Rare Tumors; project of Conversations with the patientEUR 12900 Pharma Grupo Español de Pacientes con Cáncer (GEPAC)
Patient / public education and awareness on disease: project "Relationship between Health Care Workers" (October) and "Marketing and Social Networks Course" (July) within the training program of the association for advocatesEUR 10000 Pharma - Sweden
Patient Group Name and purpose of support Amount LC Division Alzheimerföreningen i Sverige
Patient / public education and awareness on disease: theme events in different locations across SwedenSEK 100000 Pharma Alzheimerföreningen i Sverige
Patient / public education and awareness on disease: educational events (3); seminar during Almedalen weekSEK 68000 Pharma Blodcancerförbundet
Patient / public education and awareness on disease: Educational meeting on Myelofibrosis in Örnsköldsvik;SEK 5000 Pharma Blodcancerförbundet
Services provided by a third party: Wikipedia publication on CMLSEK 20000 Pharma Bröstcancerföreningarnas Riksorganisation (BRO)
General support of activities: annual award for breast cancer nurse; MagazineSEK 45000 Pharma Bröstcancerföreningarnas Riksorganisation (BRO)
Patient / public education and awareness on disease: information material in regional meeting; patient information in different languagesSEK 85000 Pharma Bröstcancerföreningarnas Riksorganisation (BRO)
Patient / public education and awareness on disease: regional educational meetings - Regions in North, Region Uppsala/ÖrebroSEK 20400 Pharma Carpa Patientförening
Services provided by a third party: attendance to Global advisory board NETSEK 10500 Pharma Carpa Patientförening
Patient / public education and awareness on disease: national education meeting in StockholmSEK 12000 Pharma Carpa Patientförening
Speaker services at nurses' meetingSEK 8000 Pharma Hypophysis
General support of activities: infrastructureSEK 5000 Pharma Mag Tarm Förbundet Sverige
Speaker services for GIST education of the boardSEK 5500 Pharma Mag Tarm Förbundet Sverige
Services provided by a third party: educational event organized by Sarcoma center at Karolinska hospitalSEK 16500 Pharma Nätverket mot cancer
Patient / public education and awareness on disease: annual summit in Almedalen; HTA educationSEK 36200 Pharma Nationell samverkan för psykisk hälsa i Göteborg (NSPHiG)
Speaker services for Novartis eventSEK 3500 Pharma Ögonfonden
Indirect support -Use of Novartis' website for eventSEK 3000 Pharma Svenska Föreningen för Tuberös Scleros
Patient / public education and awareness on disease: Annual TSC event at Karolinska hospitalEUR 46000 Pharma Ung Cancer
Speaker services at nurses' educational meeting at Sahlgrenska hospital, GothenburgSEK 6000 Pharma - Switzerland
Patient Group Name and purpose of support Amount LC Division aha! Allergiezentrum Schweiz
Patient / public education and awareness on disease: national allergy day, award, brochure, mini-cup event (soccer tournament for children with asthma & allergies)CHF 28000 Pharma AIDS-Hilfe Schweiz
General support of activitiesCHF 10000 Group Fondation ProTransplant
Patient / public education and awareness on disease: bicycle marathon for transplanted patientsCHF 2000 Pharma GIST-Gruppe Schweiz
Congress attendance at international GIST-congressesCHF 2000 Pharma GIST-Gruppe Schweiz
Patient / public education and awareness on disease: meetings, website translation, educational brochures, GIST awardCHF 10000 Pharma Ligue Fribourgeoise contre le Rheumatisme (Rheumaliga)
Patient / public education and awareness on diseaseCHF 1000 Pharma Ligue Genevoise contre le Rhumatisme
Patient assistance program for children with rheumatic diseasesCHF 30000 Pharma Ligue Genevoise contre le Rhumatisme
General support of activities: sport week-end for children with rheumatic diseasesCHF 1000 Pharma Myelom Kontaktgruppe Schweiz
Patient / public education and awareness on disease: symposiumCHF 5000 Pharma Regionalgruppe Schweiz des Vereins Tuberöse Sklerose (TSC)
Congress attendance at international congresses on tuberous sclerosisCHF 5000 Pharma Retina Suisse
Patient / public education and awareness on disease: national congressCHF 40000 Pharma Schweizer Selbshilfegruppe für Krankheiten der Hypophyse (Wegweiser)
Indirect support - Use of Novartis' resourcesCHF 1570 Pharma Schweizer Selbshilfegruppe für Krankheiten der Hypophyse (Wegweiser)
Patient / public education and awareness on disease: emergency health card and patient education symposium (Herbsttagung)CHF 3000 Pharma Schweizerische Gesellschaft für Cystische Fibrose (CFCH)
General support of activities: sport week-end for children with CFCHF 2000 Pharma Schweizerische Gesellschaft für Cystische Fibrose (CFCH)
Patient / public education and awareness on disease: meetings for CF patients and their families, reprints of education materialCHF 12000 Pharma Schweizerische Gesellschaft für Cystische Fibrose (CFCH)
Patient assistance medical care for children with CFCHF 10000 Pharma Schweizerische Herzstiftung
General support of activitiesCHF 77000 Group Schweizerische Multiple Sklerose Gesellschaft
Patient assistance MS-Sprechstunde programCHF 60000 Pharma Schweizerische Patientenorganisation für Lymphombetroffene und Angehörige (Ho/NoHo)
Patient / public education and awareness on disease: symposiumCHF 500 Pharma Schweizerischer Transplantierten Verein (AST/STV)
Patient / public education and awareness on disease: symposiumCHF 10000 Pharma Selbsthilfegruppe Schweizer Wegweiser
Consultancy services at the EU Pituitary round table Zurich 2012EUR 300 Pharma Stiftung zur Förderung der Knochenmarktransplantation
Patient / public education and awareness on disease: educational brochures and programsCHF 10000 Pharma Stiftung zur Förderung der Knochenmarktransplantation
Congress attendance of one member to attend international congresses on bone marrow transplantationCHF 2000 Pharma Verein für Hoerbehinderte des Kantons Zug
General support of activitiesCHF 300 Group - Turkey
Patient Group Name and purpose of support Amount LC Division Akromegali ile Yaşam Derneği
Patient / public education and awareness on disease: activities at National Acromegaly DayTRY 10000 Pharma Ankara Talasemi Derneği
Patient / public education and awareness on disease: patients' meeting, seminar for patients and relativesTRY 2000 Pharma Aydın Talasemi Derneği
Patient / public education and awareness on diseaseTRY 5000 Pharma Cukurova Talasemi Dernegi
Patient / public education and awareness on disease: 3 patients' meetingsTRY 10000 Pharma Diyarbakır Talasemi Derneği
Patient / public education and awareness on disease: thalassemia and SCD meetingTRY 3000 Pharma Ege Talasemi Derneği
Patient / public education and awareness on disease: "Kan Bagisi Can Bagisi" CampaignTRY 11000 Pharma Elazığ MS ile Yaşam Derneği
Patient / public education and awareness on disease: patients' meetingTRY 23760 Pharma Europa Donna Türkiye
Services provided by a third party: 2 board members' participation at SABCS;USD 11375 Pharma Europa Donna Türkiye
Patient / public education and awareness on diseaseTRY 2500 Pharma Europa Donna Türkiye
Services provided by a third party: capacity building Training - ICBA projectTRY 6722 Pharma Europa Donna Türkiye
Services provided by a third party: website maintenanceTRY 3568 Pharma Europa Donna Türkiye
Services provided by a third party: travel support and registration at SABCEUR 3000 Pharma Genç Birikim Derneği
Patient / public education and awareness on disease: annual "Oncology Days"TRY 10000 Pharma Hatay Talasemi ve Orak Hücre Hastalıkları Derneği (
Patient / public education and awareness on disease: patients' meetingTRY 3000 Pharma Izmir MS Dernegi
Services provided by a third party: Capacity Building Training/ ICBA ProjectTRY 5500 Pharma Izmir MS Dernegi
Patient / public education and awareness on disease: meetings with psychologist support ; funding the capacity building educational programTRY 27004 Pharma Kan Hastalıkları Koruma, Tedavi ve Dayanışma Derneği
Patient / public education and awareness on disease: meetingsTRY 13500 Pharma Kanserle Yaşam ve Dayanışma Derneği
Patient / public education and awareness on disease: Cancer Week awareness meetingsTRY 5000 Pharma Konya Talasemi Derneği
Patient / public education and awareness on disease: meetingTRY 2000 Pharma Lösemi ve Kanser Hastaları Sağlık Eğitimi Derneği
Services provided by a third party: Capacity Building Training/ ICBA ProjectTRY 6722 Pharma Losemi Lenfoma Miyelom Hastalari ve Arastirma Egitim Birligi Dernegi
Patient / public education and awareness on diseaseTRY 20000 Pharma Losemi Lenfoma Miyelom Hastalari ve Arastirma Egitim Birligi Dernegi
Services provided by a third party: Capacity Building Training/ ICBA ProjectTRY 6722 Pharma Onkoloji Hastalari Yardimlasma ve Sevgi Dernegi
Services provided by a third party: Capacity Building Training/ ICBA ProjectTRY 6722 Pharma Pembe Hanim Kanserli Hasta ve Yakinlari ile Dayanisma Dernegi
Services provided by a third party: Capacity Building Training/ ICBA ProjectTRY 2499 Pharma Talasemi Araştırma ve Uygulama Derneği
Patient / public education and awareness on disease: meetingTRY 15000 Pharma Talasemi Federasyonu
Services provided by a third party: Website maintenanceTRY 8640 Pharma Türkiye MS Derneği - Ankara Şubesi
Patient / public education and awareness on disease: educational brochure on World MS DayTRY 5310 Pharma Turkiye MS Dernegi
Services provided by a third party: Capacity Building Training/ ICBA ProjectTRY 5500 Pharma Turkiye MS Dernegi
Patient / public education and awareness on disease: World MS Day activities; patient educational meetingsTRY 75020 Pharma İstanbul Kanser Hastaları ve Yakınları Derneği
Patient / public education and awareness on disease: cancer awareness brochuresTRY 8500 Pharma İstanbul Kanser Hastaları ve Yakınları Derneği
Services provided by a third party: Capacity Building Training/ ICBA ProjectTRY 6722 Pharma - Ukraine
Patient Group Name and purpose of support Amount LC Division Ассоціація інвалідів розсіяного склерозу
General support of activities: organization of conferenceUAH 27300 Pharma Ассоціація ХМЛ "Осанна"
Patient / public education and awareness on disease: organization of conferenceUAH 516481 Pharma Всеукраїнська Громадська Організація ""Асоціація хворих на хронічний мієлолейкоз ""Осанна""""
Patient / public education and awareness on disease: activities for CML patients and hematologists, conference with press & media coverageUAH 441481 Pharma Всеукраїнська громадська організація "За здорове суспільство"
Patient / public education and awareness on disease: program on hepatitisUAH 365000 Pharma Всеукрахнський союз жінок-трудівниць "За майбутнє дітей України"
General support of activities: purchase of equipmentUAH 150000 Pharma Запорізький благодійний фонд "Світлозір"
Patient / public education and awareness on disease: educational material for patientsUAH 20000 Pharma Украинская федерация диабета
General support of activities: organization of conferenceUAH 15000 Pharma - United Kingdom
Patient Group Name and purpose of support Amount LC Division ACLT- Promoting Bone Marrow and Blood Donation
General support of activities: programs for patients, families and care givers to those affected by a leukemia or blood disorderGBP 15000 Pharma Allergy Research Foundation
General support of activities: conference entitled 'The difficult to manage allergy patient'GBP 15000 Pharma Asthma UK
General support of activities: membership, partnershipGBP 20000 Pharma Asthma UK
General support incl. advocacy, membership, etc.GBP 30000 Pharma Asthma UK
Use of Novartis' material/ resourcesGBP 100 Pharma Breakthrough Breast Cancer
General support of activitiesGBP 5000 Pharma Breast Cancer Care
General support of activities: educational program for health care professionals.GBP 15000 Pharma British Lung Foundation
General support of activities: asthma pilot project to improve asthma services and outcomes in the UKGBP 12357 Pharma Cancer Campaigning Group
General support of activitiesGBP 10000 Pharma Cancer Research UK
General support of activities: Scotland against Cancer, a conference on cancer policy organized by the Scottish Parliament's Cross Party Group on CancerGBP 2000 Pharma Cancer52
General support of activitiesGBP 14500 Pharma CML Support
General support of activities: programs for patients, families and care givers affected by chronic myeloid leukemia, and other leukemiaGBP 16500 Pharma CML Support
Consultancy services for CML Advocates Advisory Board Meeting in Milan, November 2012EUR 2060 Pharma Cystic Fibrosis Trust
General support of activities: Annual CF Directors Meeting with clinical medical educationGBP 12000 Pharma Diabetes UK
Patient / public education and awareness on disease: provide people with diabetes access to information on eye health and diabetesGBP 10000 Pharma GIST Support
Patient / public education and awareness on diseaseGBP 5000 Pharma Group B Strep Support UK
Speaker services at Novartis internal meeting and contribution to publicationEUR 180 V&D James Whale Fund for Kidney Cancer
Patient / public education and awareness on disease: patient days and educational campaigns, pop-up standGBP 1000 Pharma James Whale Fund for Kidney Cancer
Patient / public education and awareness on diseaseGBP 9000 Pharma juvenile diabetes research foundation (JDRF)
Patient / public education and awareness on disease: parliamentary roundtable with political stakeholders to raise awareness of the need to invest in UK diabetes researchGBP 6500 Pharma Leukemia CARE
Consultancy services at Myelofibrosis Advocates Advisory Board Meeting in Milano, January 2012 and in Amsterdam in June 2012EUR 2970 Pharma Leukemia CARE
General support of activities: Nurses' DayGBP 3000 Pharma Leukemia CARE
Patient / public education and awareness on disease: programs for patients, families and care givers who are affected by chronic myeloid leukemia, and other leukemia.GBP 11250 Pharma Leukemia CARE
Patient / public education and awareness on diseaseGBP 10000 Pharma Macmillian Cancer Support
General support of activities: Britain Against Cancer Conference attended by healthcare professionals, patients, patient groups, industry members and policy makers with the aim of looking at topical issues in cancer policy and patient careGBP 4600 Pharma MDS UK
Patient / public education and awareness on disease: programs for patients, families and care givers who are affected by MDSGBP 12000 Pharma Men's Health Forum
General support of activities: roundtable to discuss steps to lower the burden of cancer in men with key stakeholders and decision-makers.GBP 6000 Pharma Meningitis Research Foundation
Services provided by a third party: communication for World meningitis day, "Keep Watching"GBP 72000 V&D Meningitis Research Foundation
Patient / public education and awareness on disease: Patient experience videos, HECON project "Counting the Costs", support helpline, IPNC congress attendance, video "Keep watching"GBP 91500 V&D Meningitis Trust
Services provided by a third party: communication for World meningitis day, "Keep Watching"GBP 55000 V&D Meningitis Trust
General support of activities: Volunteer Development Program, Public Affairs Program, PR campaign "Keep Watching"GBP 43000 V&D Meningitis UK
Patient / public education and awareness on disease: Ambassadors Program, PR Campaign "Keep Watching"GBP 30000 V&D Meningitis UK
Services provided by a third party: communicationGBP 52000 V&D MPD Voice
Consultancy services for Myelofibrosis Advocates Advisory Board Meeting, in Milano January 2012EUR 2800 Pharma MPD Voice
General support of activities: programs for patients, families and care givers who are affected by myelofibrosis, and other MPNsGBP 15000 Pharma Multiple Sclerosis Trust
Patient / public education and awareness on disease: Annual National Conference for MS NursesGBP 15465 Pharma Multiple Sclerosis Trust
General support of activities: MS Therapist Educational FundGBP 5000 Pharma Multiple Sclerosis Trust
Patient / public education and awareness on disease: Information serviceGBP 3000 Pharma Myeloma UK
Congress attendance at American Society of Hematology ConferenceGBP 1000 Pharma Myeloma UK
General support of activities: programs for patients, families and care givers who are affected by multiple myelomaGBP 15000 Pharma National Kidney Federation
General support of activities to promote the best renal medical treatment for chronic kidney disease and established renal failureGBP 17000 Pharma NET Patient Foundation
Patient / public education and awareness on disease: project European NET Nurse Online ForumEUR 5000 Pharma NET Patient Foundation UK
General support of activities: "NET Nurses online forum"EUR 5000 Pharma NET Patient Foundation UK
General support of activities: patient days and educational resourcesGBP 18000 Pharma NET Patient Foundation UK
Services provided by a third party: support attendance at Novartis sponsored advisory boardEUR 500 Pharma OSCAR Sandwell
Patient / public education and awareness on disease: programs for patients, families and care givers who are affected by sickle cell and thalassemiaGBP 2000 Pharma Pancreatic Cancer UK
General support of activities: pancreatic cancer early detection summit.GBP 8000 Pharma Pituitary Foundation
Consultancy services for he EU Pituitary round table Zurich 2012EUR 150 Pharma Pituitary Foundation
Patient / public education and awareness on diseaseGBP 15000 Pharma Rare Disease UK
General support to implement the Rare Disease Plan in the devolved nations (primarily Scotland and Wales) and tackle inequities in access to treatment in comparison to England.GBP 7500 Pharma Rarer Cancers Foundation
General support of activities: Policy and stakeholder engagement programGBP 20000 Pharma Royal National Institute for Blind People
Patient / public education and awareness on disease: Eyepod program to raise awareness of eye conditions amongst Novartis employees.GBP 700 Pharma Royal National Institute for Blind People
Patient / public education and awareness on disease: activities on sight lossGBP 32500 Pharma Royal National Institute for Blind People
General support of activities: Vision 2012 conferenceGBP 7500 Pharma Royal National Institute for Blind People
General support of activities: Eyepod campaignGBP 7500 Pharma Royal National Institute for Blind People
General support of activities: support and guidance in developing eye care and sight loss services with the clinical commissioning group, local authority and the voluntary sectorGBP 79000 Pharma Royal National Institute for Blind People
Research grant to support the collection of data from 25,000 certificates of visual impairment to produce data to inform planning of eye health and social care servicesGBP 70000 Pharma Royal National Institute for Blind People
Research grant to support the collection of epidemiological data on visual impairmentGBP 70000 Pharma Royal National Institute for Blind People
Congress attendance to AAO congress in ChicagoGBP 1400 Pharma Sarcoma UK
Patient / public education and awareness on diseaseGBP 5000 Pharma Shift.ms (Multiple Sclerosis
Patient / public education and awareness on disease: educational movies, at the MS Trust National ConferenceGBP 2724 Pharma Sickle Cell Society
General support of activities: programs for patients, families and care givers who are affected by sickle cellGBP 10000 Pharma Sickle Cell Stroke and Young Survivors
General support of activities: programs for patients, families and care givers who are affected by sickle cellGBP 7000 Pharma The British Lung Foundation
Patient / public education and awareness on disease: membership program and vital support offered to people with lung diseaseGBP 14500 Pharma The British Lung Foundation
General support of activities: pilot project (18 month) to test the validity and sustainability of the Organization's enhanced asthma management model for the UK.GBP 12508 Pharma Tuberous Sclerosis Association-UK
Patient / public education and awareness on disease: up-date of educational materialGBP 10000 Pharma UK MS Society
Patient / public education and awareness on disease: Creation of an interactive map on the MS Society websiteGBP 27500 Pharma UK MS Society
Patient / public education and awareness on disease: development of guidance on symptomatic management of MS in primary careGBP 15000 Pharma UK MS Society
Patient / public education and awareness on disease: Launch of Work Foundation reportGBP 3000 Pharma UK MS Society
Patient / public education and awareness on disease: MS Life 2012GBP 7200 Pharma UK MS Society
General support of activities: MS Professional of the YearGBP 18000 Pharma UKTS
General support of activities: programs for patients, families and care givers who are affected by thalassemiaGBP 13000 Pharma Visionary
General support of activities: annual Conference for local societiesGBP 18000 Pharma Visionary
Services provided by a third party: media outreach of the Sight Saved ReportGBP 25000 Pharma - European associations
Patient Group Name and purpose of support Amount LC Division ECPC - European Cancer Patient Coalition
General support of activitiesEUR 40000 Pharma EFA - European Federation of Allergy and Airways Diseases Patients Associations
General support of activities: annual support of activities; COPD awareness project 2012EUR 75000 Pharma EHLTF - European Heart and Lung Transplant Federation
General support of activities: meetings, presentations, expansion of federationEUR 26100 Pharma ELF - European Lung Foundation
Patient / public education and awareness on disease: European Patient Ambassador Program. Development of an online training course to enable European patients to better interact with professionals, politicians and the media.EUR 25000 Pharma ELF - European Lung Foundation
Patient / public education and awareness on disease: promotion of 2012 World Spirometry DayEUR 10000 Pharma ELPA - European Liver Patients Association
Patient / public education and awareness on disease: twitter project during EASL ILC 2012EUR 20000 Pharma ELPA - European Liver Patients Association
Patient / public education and awareness on disease: support project of European Hepatitis Index and of World Hepatitis Day 2012EUR 40000 Pharma ELPA - European Liver Patients Association
Patient / public education and awareness on disease: launch of the ELPA European Hepatitis Index in 2012USD 25000 Pharma EPF - European Patients' Forum
Patient / public education and awareness on disease: eHealth ConferenceEUR 20000 Pharma EUROPA DONNA, the European Breast Cancer Coalition
General support of activitiesEUR 50000 Pharma EUROPA DONNA, the European Breast Cancer Coalition
Indirect support - participation at Novartis educational meeting on qualityUSD 5150 Pharma EUROPA DONNA, the European Breast Cancer Coalition
Indirect support for travel to ICBA workshop in PragueEUR 600 Pharma EUROPA UOMO, the European Prostate Cancer Coalition
Patient / public education and awareness on diseaseEUR 5000 Pharma European Hadj and Umrah Committee
Patient / public education and awareness on disease: meningitis programsEUR 5000 V&D European Men's Health Forum
Research grant to Gender & Health projectEUR 12000 Group European Men's Health Forum
General support of activities: "Gender and Health Through Life"" conference in Copenhagen, JuneEUR 12000 Group European Men's Health Forum
Congress attendance at the European Health ForumEUR 1710 Group European Men's Health Forum
Patient / public education and awareness on disease: Workshop manual "For your eyes"EUR 10000 Group European Multiple Sclerosis Platform
General support of activitiesEUR 20000 Pharma European Multiple Sclerosis Platform
Patient / public education and awareness on disease: Under Pressure project in 2012EUR 25000 Pharma European Multiple Sclerosis Platform
Research grant for EUReMS project in 2012EUR 15000 Pharma European Patients' Forum
General support of activities: 2012 project portfolio programEUR 30000 Pharma European Patients' Forum
General support of activities: implementation of 2012 Operational Work ProgramEUR 30000 Pharma European Patients' Forum
Services provided by a third party: travel support for a speech at ICBA workshop PragueEUR 900 Pharma EURORDIS
General support of activities: membership for Roundtable of companies and grant to support yearly meeting for membersEUR 15000 Group EURORDIS
Research grant for EpiRare project for EU registries and databases on rare diseasesEUR 17000 Group International Diabetes Federation - European Region
Patient / public education and awareness on disease: EU Prize in Diabetes 2012 awarded during World Diabetes Day event at EU parliament in BrusselsEUR 10000 Pharma International Diabetes Federation - European Region
General support of activities: membershipEUR 25000 Pharma International Diabetes Federation - European Region
Patient / public education and awareness on disease: "Life with diabetes" workshop during TWAS 2012 in Lisbon; World Diabetes Day 2012 event at EU Parliament in BrusselsEUR 25000 Pharma Myeloma Patient Europe
General support of activitiesEUR 30000 Pharma OIFE - Osteogenesis Imperfecta Federation Europe
Patient / public education and awareness on disease: 2012 projectsEUR 3000 Pharma SARCOMA PATIENTS EURONET E V./ASSOC. - SPAEN
General support of activities: membershipUSD 7380 Pharma SARCOMA PATIENTS EURONET E V./ASSOC. - SPAEN
General support of activitiesEUR 16000 Pharma - International associations registered in Europe
Patient Group Name and purpose of support Amount LC Division Das Wissenhaus GmbH
Patient / public education and awareness on diseaseUSD 20000 Pharma International Alliance of Patient Organizations
General support of activities: annual partnershipUSD 50000 Pharma International Brain Tumour Alliance – IBTA
Speaker services at Novartis Oncology meeting in London, OctEUR 500 Pharma International Brain Tumour Alliance – IBTA
General support of activitiesEUR 5500 Pharma International Chronic Myeloid Leukemia Foundation -iCMLf
Patient / public education and awareness on disease: virtual education program projectUSD 60000 Pharma International Diabetes Federation
General support of activities: World Diabetes DayEUR 100000 Pharma International Federation of Psoriasis Associations- IFPA
General support of activitiesEUR 25000 Pharma International Federation of Psoriasis Associations- IFPA
Patient / public education and awareness on disease: twitter project at the 21st Congress of the EADV, in Prague, September 2012EUR 10000 Pharma International Federation of Psoriasis Associations- IFPA
Patient / public education and awareness on disease: twitter project at the 3rd World Psoriasis and Psoriatic Arthritis Conference 2012EUR 12000 Pharma International Federation of Psoriasis Associations- IFPA
Patient / public education and awareness on disease: World Psoriasis Day 2012EUR 30000 Pharma Multiple Sclerosis International Federation - MSIF
Patient / public education and awareness on disease: World MS Day 2012GBP 19000 Pharma Thalassaemia International Federation
Consultancy services: travel and accommodation for 6 TIF experts for heamoglobinopaties projects in Barcelona (July ) and Cyprus ( October) 2012EUR 7461 Pharma Thalassaemia International Federation
Congress attendance of two members to attend the Global Iron Summit in Vienna, March 2012EUR 7140 Pharma World Hepatitis Alliance
Patient / public education and awareness on disease: World Hepatitis Day and 2012 projectsEUR 65000 Pharma
Europe non-members
- Albania
Patient Group Name and purpose of support Division Shoqata e Thalasemikeve te Shqiperise
Congress attendance (registration, travel, accommodation, etc.): 3rd Pan-European Conference on Haemoglobinopathies and Rare AnaemiasPharma Shoqata e Thalasemikeve te Shqiperise
Services provided by a third party: MRI T2* softwarePharma Shoqata e Thalasemikeve te Shqiperise
Patient assistance: transportation to hospital clinicsPharma Shoqata e Thalasemikeve te Shqiperise
Patient / public education and awareness on disease: Thalassemia DayPharma Shoqata ne mbrojtje te pacienteve me leukemi
Congress attendance (registration, travel, accommodation, etc.): CML Horizons 2012 Patient Advocacy Conference,Pharma Shoqata ne mbrojtje te pacienteve me leukemi
Services provided by a third party: molecular diagnosisPharma Shoqata ne mbrojtje te pacienteve me leukemi
Patient / public education and awareness on disease: Leukemia DayPharma Shoqata "Europa Donna Albania"
Patient / public education and awareness on disease: different activities during October Breast Cancer month,Pharma Shoqata kosovare per perkrahjen e pacienteve me leukemi
Congress attendance (registration, travel, accommodation, etc.): CML Horizons 2012 Patient Advocacy Conference,Pharma - Austria
Patient Group Name and purpose of support Division Österreichischer Herzverband Tirol - Hilfe für das Kinderherz
General support: patients eventSandoz Schritt für Schritt
Patient assistance for children with Prader-Willi syndromeSandoz - Bosnia-Hercegovina
Patient Group Name and purpose of support Division Zagrljaj udruga oboljelih od limfoma i leukemije
Patient / public education and awareness on diseasePharma The Association of the Affected by Acromegaly and Pituitary Diseases in Bosnia and Herzegovina
Consultancy, speaker services: EU Pituitary RoundtablePharma - Bulgaria
Patient Group Name and purpose of support Division Нацианална Пациентска Организация
Patient / public education and awareness on diseaseAlcon - Czech Republic
Patient Group Name and purpose of support Division AA klub Homolka - sdružení na pomoc chronicky nemocným dětem
Patient assistance programs for children with asthmaSandoz Auxilium Psychosociale o.s.
Patient / public education and awareness on diseaseSandoz IBD - Comfort nadační fond
Patient / public education and awareness on diseaseSandoz Společnost pro pomoc při Huntingtonově chorobě
General support: technical equipmentSandoz - Finland
Patient Group Name and purpose of support Division Suomen PWS Yhdistys ry
Patient / public education and awareness on diseaseSandoz Suomen Turner –yhdistys ry
Patient / public education and awareness on diseaseSandoz - Germany
Patient Group Name and purpose of support Division Bundesverband Kleinwüchsige Menschen und ihre Familien e.V.
General support: educational grantSandoz Deutsche Schmerzliga e.V
General support: educational grantSandoz - Italy
Patient Group Name and purpose of support Division Associazione Claudio Colombo per l'oncologia
Patient assistance programs: psychological -socialSandoz Unione Italiana Ciechi e Ipovedenti
Patient / public education and awareness on diseaseAlcon - Macedonia
Patient Group Name and purpose of support Division Здружение на граѓани за помош на пациенти болни од хронична леукемија ХМЛ, Скопје, Македонија
Patient / public education and awareness on diseasePharma - Poland
Patient Group Name and purpose of support Division Fundacja Gajusz
General support: infrastructureSandoz Polskie Towarszystwo Walki z Kalectwem
Services provided by a third party to renovate a room for pre-school for disabled children.Sandoz Stowarzyszenie "Metalowych Serc"
Patient / public education and awareness on diseaseSandoz - Romania
Patient Group Name and purpose of support Division Asociatia OncoHelp
General support: infrastructure and trainingSandoz Asociatia OncoHope
Services provided by a third party: medical equipment (2 infusion pumps)Sandoz Asociatia Oncomed Iasi
General support: infrastructureSandoz Fundatia ProHem
General support: trainingSandoz - Slovenia
Patient Group Name and purpose of support Division Društvo ledvičnih bolnikov Ljubljana
Patient assistance: support of dialysis camp for children and adolescents with end stage renal failure or renal transplantSandoz Društvo za pomoč v stiski "Zarja"
Patient / public education and awareness on diseaseSandoz Medobčinsko društvo delovnih invalidov Lendava
Patient assistance (financial, psycho-social, etc.)Sandoz - Spain
Patient Group Name and purpose of support Division Asociación Española de Glaucoma
Patient / public education and awareness on diseaseAlcon Federación de Diabéticos Españoles (FEDE)
Patient / public education and awareness on diseaseAlcon - United Kingdom
Patient Group Name and purpose of support Division British society of endocrinology
Patient education and awareness on diseaseSandoz Efficacy & safety of Prescribing In Transplantation
Patient / public education and awareness on diseaseSandoz
