Body painter captures anguish of those who suffer from psoriasis
To understand the impact of psoriasis on those who live with it, we helped organize a global survey of more than 8,000 people who have this skin condition. Then we commissioned a body painter to bring the results to life, using skin as her canvas.
Sep 22, 2016
How a bodypainter took a survey about living with #psoriasis and brought it to life #skintolivein
If you’ve ever assumed that psoriasis is little more than a cosmetic issue, you would not be the first. According to the IFPA, the chronic inflammatory disorder affects roughly 125 million people worldwide, but it's still largely misunderstood. Because skin lesions are often the most obvious symptom of the disease, many write off psoriasis as only skin deep, ignoring its physical, mental and emotional toll.
A recent 49-page World Health Organization (WHO) global report debunked this myth, bringing the public health impact of psoriasis into focus with the message that much of the suffering caused by this common and complex disease can be avoided.
I just want to feel comfortable with myself and live normally, without the shame of showing myself.
Inspired by the WHO report, we partnered with 25 patient organizations around the world to survey 8,300 patients from 31 countries, the largest global psoriasis survey to date.
But data tells only part of the story. To make the results more tangible, we commissioned an artist – body painter Natalie Fletcher, who also has psoriasis – to interpret survey participants’ experiences, using skin as her canvas.
Fletcher took inspiration from survey participants’ answers. Here are their words and the pictures they inspired:
33% of those surveyed report feeling inadequate as a partner. That feeling can extend to all kinds of relationships, even between a parent and child. This photo brings to light the sensation of fear of contagiousness, which often lies at the heart of the issue.
In addition to emotional issues, many survey respondents say they experience physical symptoms less commonly associated with skin disease, such as difficulty walking or even performing simple actions such as opening a jar.
Many survey respondents say they have dealt with feelings of aloneness and brokenness, as well as fear. For this photo, the artist used a broken mirror to represent a broken heart.
“I hope people get a little bit of awareness about what psoriasis is and what people who have it deal with,” says Natalie Fletcher, who created these paintings using real patient quotes as inspiration. “I think it's nice to put that message out there of ‘it's not contagious, it's not your fault’ to just bring some kindness.”
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The body painting project was meant to illustrate the trials many people experience on a daily basis in visually vivid terms. Because of the sensitivities psoriasis patients often feel around showing their skin, models were used for this exercise. However, all quotes are from actual survey participants. See more of Fletcher’s work and follow the #SkinToLiveIn conversation.